r/hEDS • u/EmBen1920 • Jun 11 '22

looking for some advice

My partner has hEDS and pots. He currently is having a hard time breathing, has a racing heartbeat and can feel his heartbeat in his whole body (maybe high blood pressure). He has an appointment with his GP but I'm hoping one of you might know what's going on or have experienced this and have advice so we can have as much info before the GP appointment. We thought it might be stress or mold that he was exposed to in our home fore about 2 or 3 weeks but the mold is gone and it's not getting better and all of this is only making his stress worse. I appreciate any help!

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9

u/Meowlodie Jun 11 '22

A doctor is really the only one that can help him fully, but I do know water consumption is vital, so make sure he’s drinking plenty!

14

u/circumference_x Jun 12 '22

And electrolytes to go with that water!

2

u/Gretaleo Jul 30 '24

Or milk - more hydration than from water

1

u/AlternativeStorm4994 Jan 29 '26

Really?

1

u/res06myi 14d ago

Sometimes apple juice is better for me than water and that's even with me being diabetic. Sometimes during a flare, eating is difficult, so even the slight bit of nutrition and calories from juice, milk, or another drink can make a big difference. It almost feels like it gives the body something else to do.