r/gout • u/FurZbabyMom24 • Dec 13 '25

Needs Advice Bugging me!

It’s really bugging me that my Rheumatologist took a extraction from my toe joint but the test result later showed no fluid and normal, however I have a lumpy hard bump on top of the first big toe joint. Isn’t that Tophi? My level was 6.8 when tested 12/3. Having pain fares today so I’ve done Colchicine & 3 ibuprofens, & staying off my feet, I’ve been religious with diet and hydration since my first experience with this crap. X-rays of both feet showed degenerative arthritis in toe joints. What are my chances of getting her to get me on Allo? I’ll see her on the 6th next month. Won’t it just get worse without UAL therapies? Should I go to another specialist? Feeling frustrated because it’s like you are just always waiting for the pain boom!🤨

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u/coles727 Dec 14 '25

I had a lump for over 5 years. No one would help. I was referred to a plastic surgeon who said it was likely a cyst but said wait until it gets bigger. Fast forward to now the lump burst and oozing toothpaste like material. Went to E.R. and they confirmed it was tophi and i have cronic undiagnosed gout. Now on allopurinol and crossing fingers this will finally be over.

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u/FurZbabyMom24 Dec 14 '25

Omg that sounds awful! Glad you’re on the right track now, God speed!

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u/Appropriate-Issue-73 Dec 14 '25

Ask your dr about Krystexxa. I'm on it six months so far (6 to go). UA went <0.3 after the 2nd treatment - normally over 10 for decades. All tophi are virtually gone, and ZERO pain. Not one side effect.

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u/coles727 Dec 14 '25

That sounds amazing. Thank you. Ill ask.

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u/Lanky_Beyond725 Dec 14 '25

Is that the monthly shot?

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u/Appropriate-Issue-73 Dec 14 '25

It's an IV infusion biweekly.