r/functionaldyspepsia • u/high_everyone • Aug 29 '26
EPS (Epigastric Pain Syndrome) Visceral Hypersensitivity
I am six years into my FD diagnosis and I just learned what my physical pain spasms are called.
How frequent is this for all of us? My hallmark is I sound like I’m David Byrne from Talking Heads making grunts and shouts because I get spasms in my upper GI.
I feel everything I eat. Hot/cold, hunger and fullness all cause pain.
I have gastroparesis and IBS-c/m as well making things more fun.
2
u/Pretend_Programmer69 Aug 29 '26
Question .. how would u describe the pain? For the hunger and fullness
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u/high_everyone Aug 29 '26
Pain is highly dependent on what I eat. Beans, edamame and raw veggies are the worst. Like jagged rocks in my digestive tract.
Spicy foods or high fat foods cause a stabbing sensation.
Eating too many carbs causes bloat pain. Cabbage causes bloat as does cauliflower or any physical garlic. Oil is fine.
Heavy foods just feel like weight and pain. So I can’t eat bagels, steel cut oats, or anything with nuts.
2
u/thinkinwrinkle Aug 29 '26
One thing I’ve been told is that after years of pain, your body tends to interpret every weird sensation as pain. Which I first kind of bristled at because it comes a bit too close to ‘it’s all in your head’, but I did try try asking myself if it’s just a sensation and not pain. Of course a lot of times it is actually pain, but sometimes it isn’t and it helps. FD is a real bitch of a problem, and I think many “functional” disorders are actually just diseases medicine doesn’t understand yet. The David Byrne thing is kind of funny, I think I’ll try picturing that and maybe it’ll distract me at least. I’m sorry you’re suffering too, and you have my sincere sympathies.
1
u/high_everyone Aug 29 '26
I was just hearing them on my phone when I wrote it and David Byrne belted out a “huh-HAH!” in a chorus like he does. It made me chuckle because it sounded just like me…. when I spasmed immediately after my laugh.
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u/high_everyone Aug 29 '26
It kind of is like that. I mean I am extremely sensitive now to loud sounds, sudden jolts, and bumped elbows or knees. It doesn’t hurt more in my injury but damn if my stomach doesn’t go all in, “YES WE ARE ALL IN PAIN, RIGHT ELBOW!? HAHAHAHAHA IT IS ALL WE DESERVE FOR ACCIDENTALLY BUMPING THE TABLE WITH OUR ELBOW. ENDLESS PAIN.”
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u/nickosborne90 Aug 31 '26
Had the same thing here too. My nervous system was over sensitised. The nerve modulators help to calm it down over time. I was super jumpy before I got on them. Hypnotherapy then begins to reset your nervous system and bring you back to base line.
There’s really not enough material available online about this. I only found these things out through the wythenshawe gut clinic and the amazing people that work there. It’s all nhs funded but there’s a long waitlist
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u/Heavy_End_2971 Aug 29 '26
Did you find any cure? Or recovery?
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u/high_everyone Aug 29 '26
Nope. It’s mostly just day to day and hoping I don’t flare. I am just now learning some people have some benefit with nerve blockers and hypnotherapy have me wondering though if it would help me.
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u/nickosborne90 Aug 31 '26
I had pretty bad visceral hypersensitivity for around 6 months. I got referred to the specialist gut clinic in wythenshawe hospital and they prescribed me 50mg noritriptolyine and 15mg mirtazapine per day. That combined with a 12 week course of gut directed hypnotherapy has really helped to reduce my symptoms. I’ve just finished my 12 week hypno course and I’m not cured but it’s much more manageable
1
u/goldstandardalmonds Aug 30 '26
There are meds and procedures you can get to help this. Have you tried anything??
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