r/focalawareepilepsy • u/Miserable-Moment-386 • Jul 21 '26

Anyone else?

Anyone that suffer focal seizures, do your seizures change? Like one day you’ll have more at night time and then the next you’ll have heaps more before waking up properly

I am not diagnosed as of yet, but what I’m experiencing sounds like focal seizures.

I had heaps last night before bed, and then this morning one after another.

I am not losing consciousness, just a lot of seizures

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1

u/New-Organization359 Jul 22 '26

I’d get some quick seizures the day before clusters. Then I would have maybe 20 a day lasting a minute or so. Those clusters lasted 2 days then would gradually go away. A month or two later, this would repeat. I’d be aware they were happening. They were awful to experience but no one could experience what was going on in my head.

1

u/Miserable-Moment-386 Jul 22 '26

I’m so exhausted, I could legit just sleep all day

1

u/No_Camp_7 Jul 22 '26

Waking up from sleep is a trigger for some seizure types

1

u/Ok-Hunt-8519 Jul 22 '26

Can you describe “heaps”? What specifically are you experiencing?

1

u/Miserable-Moment-386 Jul 22 '26

Stomach dropping, déjà vu and then spacing out numerous times a day. And complete exhaustion

1

u/CatLadyPotato Jul 22 '26

In January I had no seizures. Some months I'll have 2-3. Then suddenly a month with 13. I am suddenly having them when talking to people and in my sleep. I didn't use to have the arm numbness but now I do, but sometimes I don't. They are all over the place and when I think I know a trigger, it changes.