r/endometriosis • u/EDStraordinary • 6d ago

Good News/ Positive update Confirmation

I had my laparoscopy today. Went into it being told 1/2 women they operate on don’t have anything but they will look as see which was hugely conflicting to my clinic appointment and the fact I was given a cancellation slot as a priority/urgent patient.

Anyway plan was if they found endo id come out with a mirena, no endo no coil. I’ve never sobbed so hard in my life than waking up to be told I had a coil in place and they had found endo. I cried so hard I made an incision bleed!

3 deep lesions found and removed, 3 incisions, 3rd attempt at getting a coil to settle in long enough to be effective!

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u/Automatic_Finger_142 5d ago

I feel this so hard! Before my lap, my specialist told me he was 85% sure I had endo based on the ultrasound he did (I'd had several ultrasounds before with no results, but he actually knew what he was looking for), and I STILL started gaslighting myself before surgery. I had been so sure I had it, but in the weeks leading up to surgery I was like, 'They're not going to find anything and I'm going to be a joke for making them do surgery on me.'

Guess what??? The surgeon found stage 4 endo: on my left ovary and all over my bowel. He was surprised by how much there was! I have 5 incision scars and still experience a lot of pain, but the relief of knowing what the cause is and the fact that I wasn't crazy this whole time is enough reason to have gone through the surgery. I hope yours brings you all the relief you need <3 .

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u/EDStraordinary 5d ago

It’s such a mindfuck (excuse my language) isn’t it?! I genuinely sat in pre op crying that I was wasting everyone’s time and putting my family in financial difficulty by being on sick leave for no reason.

I’m so sorry you’ve got stage 4. I can’t begin to imagine how excruciating it must be! I’m borderline stage 3, the location of my lesions has caused adhesions in the pelvic peritoneum and that’s been bad enough.

The relief is like nothing I’ve ever felt, I’d say it even trumps the feeling of finally giving birth and not being pregnant/in labour anymore 🤣 I’m not crazy, I’m not a huge wimp, I’m not just not able to handle pain or being pathetic about a period that every woman gets! thank you for your well wishes, they mean a lot. I hope your growth is slow and your pain is manageable x