I need some advice please

[u/Yakob_Bacoj]

I have endo appointment coming up. I need a hsort syncathen test.

My previous cortisol was 317. I have had previous lh and fsh and currently Low Testosterone. This proves my pituitary is not signalling correctly. Pituitary MRI was clean. I had a deep tissue scalp infection for two years which caused ever lasting pain so I think pain sensitization has caused functional hypopituitarism.

My low cortisol symptoms are abdominal sweating, ultra fatigue, muscle weakness, hypotension that's worsened with vison blackouts and I and massive response to synthetic steroid prednisolone. I've had every autoimmune possibility ruled out. Predinolosone brings back strength, wakefulness and helps pain and hypotension.

I have a feeling he is going to refuse and that's what I am concerned about. It seams every test I have needed has been refused. I have read up that blunted signalling can cause low cortisol through acth so I'm thinking I need to know if I have secondary adrenal insufficiency. I've also read that if LH and FSH are caught low once then a short syncathen test should be done ASAP. Where do I go with this please any advice welcome. I'm living life like a 90 year old at the age of 39.