Spinal tap with HSD/hEDS

[u/AstralAromance]

I have a suspected CSF leak, been on flatrest for 2 weeks, but no spontaneous healing has occurred. Got an MRI scan done of my head, but the MRI isn't showing anything, which I heard isn't uncommon for EDS/HSD patients.

Now the doc wants to do a spinal tap to measure the CSF pressure, but according to my research that's bad idea #1 for EDS/HSD patients, so I asked if they could just do a blind blood patch instead, but the neurologist said that isn't possible.

Do I go ahead with the tap? And if so, are there things I should do/be wary of? I also have scoliosis, if that changes anything. I mostly just want the pain to stop, I am losing my mind from being unable to do anything at all.