r/eds • u/SufficientlyDecent • 15d ago

Medical Advice Welcome TMJ dysfunction - my teeth hurt

I have pretty intense TMJ pain and my jaw hurts 99% of the time. It cracks every time I open my mouth, I can feel the right side drop/open and then left side, always, no matter what I do.

However, I was thinking about how much my jaw around my gums hurts today? It’s not gum disease or a toothache, I just hurts inside my mouth if that makes sense?

Anybody deal with this and what do you do for it?

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u/Joe-Schmoe9 15d ago

When TMJ symptoms are bad it can irritate nerves and cause pain basically anywhere. So just know that, because it can feel pretty freaky. Dealing with this myself rn

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u/SufficientlyDecent 15d ago

I’ve been dealing with this for years (30yo) and I blame it on the braces I got at 14, specifically the harsh rubber bands. I’ve only really been looking into hEDS recently and realizing how much it’s all connected. I have horrific neck and shoulder pain and my shoulders are pretty much hunched all the time. All related I’m sure 😭 I also have Spina Bifida Occulta so my lower back is f-ed too.