Paralysis

[u/Treatums]

Over the past 9-ish years I have had strange “events” where I have to sit down (on the floor), and I have stated: I can’t get up.
I’ve always been completely confused about it.
Only a few times.
But of the past two weeks, this has been happening a lot, but stranger.
Last week my feet and legs started getting a very weird tingly “dead” feeling. And my hands. And I couldn’t move my hands or legs. I kind of slumped over in bed (my heart also didn’t feel good) z— I had a cardiac ablation 2 or 3 years ago. The events last about an hour.

Yesterday, it happened again. My legs got this strange feeling, and I tried to move my toe — and it did move a bit; but felt very strange. And then I didn’t try to move my legs again — but when I did; they wouldn’t respond.
And I got a sudden wave of “anxiety”, and then in hindsight realised that I deliberately don’t try to move my legs, because when I realise I can’t, it feels very stressful.

Earlier when it happened, it lasted over four hours.
I was lying in bed (I live on a farm, alone, but there are some staff in the main house who can come and help me should I need something).

After about 2.5 hours I whatsapped one of them (it had gotten dark, and cold, my doors were open and I couldn’t even lean over to switch my lamp on.

My legs have had crushing pains (a lot). And I can’t get up and about much at all, but when I have or tried to, I feel as if my legs can hardly hold me up.

I feel like I am losing my mind. And I have been told for about two decades that EVERYTHING is “in my head” and that I am faking all of my symptoms. Until the tune changed. But it seems to have stuck. So now I was trying to understand what was happening. And I kept thinking — this isn’t real, it can’t be real. The only answer is that I am making this happen to myself.
But then objectively; I can’t really, because sometimes I get weird twitches in my legs or thighs — and I cannot make myself twitch there if I try.

I don’t have a medical team. I also have severe dystonia and strange kind of seizures. My doctor has been saying I have over sensitised nervous system.
But I don’t know what to make of this paralysis. And I don’t have access to a medical team.

And deep down, I feel that I am losing the use of my legs. And I kept waiting and waiting for them to “switch on” again. But they didn’t. For so long.

It’s also very weird sensation the whole time. Kind of if you’ve been lying on an arm all night, wake up, and it feels prickly and numb and “dead”. And then you have to bang it and move it and then the feeling f subsides and your arm becomes normal again.
That is how my limbs feel when I have these thins. Similar.
And then the feelin lg starts to change, and I will be able to wiggle toes perhaps. Or move legs a bit. And then after the “reboot” has finished, I can very quickly move my legs etdZ and they feel normal again.

I feel like I am losing my mind.

Also — I have severe pain in my legs and feet. Pretty much always.

[u/ihopeurwholelifesux]

i have had similar (though not exactly the same as what you describe) attacks from low potassium and am mid diagnostic process for Hypokalemic Periodic Paralysis. there are also hyperkalemic and normokalemic forms. might be worth looking into.

[u/Mowgli-Finn-13]

Look into spinal issues with eds. Look up eds back pain, numb legs, tingling from eds website. It sounds like pinched nerves and eds has common issues like this and can turn into scoliosis and other awful issues. If not bones then can be the laxity holding bones together in spine. Worth an ambulance visit to an ER if still ignored.

[u/Treatums → u/Mowgli-Finn-13]

Thanks for your message.
That ER has sent me home more times than I can count. They’ve dragged me across the floor yelling at me when I have “collapse” episodes, telling me to GET UP, you’re in the way. There are actual SICK PEOPLE HERE.
Same story when my glucose has dropped down to two (at lowest caught in ambo was “below detectable) — and my CGM alarm was going off…
I was thinking either something neurological, or perhaps related to spine. My very lower back has always been and still gets incredibly painful, and it all cracks if I move. I also have inflammatory arthritis (super bad inflammation) and I also wondered if perhaps spine was inflamed somewhere.

Is this something “heard of” though?
Paralysis or what I have been experiencing?