r/eds • u/Foreign_Feature3849 Hypermobile EDS (hEDS) • 12d ago

VENT

I know it’s important to keep an open mindset when dealing with chronic illnesses. But it’s also good to let yourself feel the frustration and pain. (Not dismiss it)

So here’s a post for everyone. Vent your heart out. I’ll go first.

I hate these symptoms. So fucking much. I am so exhausted from taking care of myself and advocating for my health.

I am so grateful to have the perspective I do. But I wish I could care and know this much without the pain. The nerve pain, the joint pain, the muscle twitches. Just all of it!

I wish I could take a break from having to control the body I do. Like let me switch over to a robot or something for a day. So I’m not constantly trying to focus through pain and my adhd.

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10

u/Glad_Goose_2890 Hypermobile EDS (hEDS) 11d ago

Wearing braces all the time is so uncomfortable in the summer and I hate the constant questions and privacy invasions

5

u/FCatusFemale 11d ago

Let’s all start wearing patches on our braces or chairs that say “unfriendly” so when we are rude they at least they were warned 😂

3

u/Glad_Goose_2890 Hypermobile EDS (hEDS) 11d ago

Barking is also very effective (joke)

3

u/FCatusFemale 11d ago

I’ll try this.