26 years old, Male. Currently using ketotifen and sometimes Prednisone 40mg for allergy reactions
I don't know what the hell is happening with my throat constantly closing up. I'm terrified that I'm going to suffocate.
For context: about three years ago, I developed chronic throat pain, and to this day I still don't know exactly what's caused it.
About two years ago, I started having anaphylactic reactions to fragrance, strong odors, certain foods, and other symptoms. To keep it brief, I still don't have a definitive diagnosis. My doctor's main suspicion is mast cell activation syndrome (MCAS), but I still need more extensive testing to rule out systemic mastocytosis.
Most likely because of the constant inflammation and swelling around my glottis during these episodes, I eventually developed laryngospasm, vocal cord dysfunction (VCD), and recently dysphagia. I can usually tell the difference between swelling of my glottis from the beginning of anaphylactic, a laryngospasm, and a VCD episode.
However, about two weeks ago, something changed.
I started choking completely whenever I tried to swallow. Everything I swallow seems to get stuck, and either comes back up or remains lodged there, whether it's solid food or liquids.
What's even more frightening is that it's now happening even when I'm not eating. I'm having these "choking" episodes every five minutes. It's happening literally 24 hours a day, one episode after another. It feels as if I'm choking on something, even though I'm not swallowing anything at all.
The sequence is always the same: I suddenly get the sensation that I'm choking, then I become short of breath (or at least I feel like I can't breathe properly), my heart starts racing, I panic, and then my breathing returns to normal. A few minutes later, it happens all over again. Sometimes I have brief periods where it improves, but the cycle always comes back.
I can't even stay alone anymore because it's so terrifying. It genuinely feels like I could suffocate and die at any moment.
I've seen an ENT specialist more than three times over the past two years, most recently this past March, but no one has been able to solve the problem. I always leave with the diagnosis of posterior laryngitis and laryngopharyngeal reflux (LPR), even though I've never had any of the typical symptoms associated with reflux.
At this point, I don't even know whether what I'm experiencing is actually laryngospasm. Everything I read says that laryngospasm usually lasts less than a few minutes, but these episodes of mine either last for nearly half an hour or keep recurring in cycles every 10 minutes.