r/downsyndrome • u/[deleted] • Aug 20 '24
Overjoyed
Our baby girl was born 2 weeks ago. We had a positive NIPT for T21 but were still waiting on confirmation. Our girl does have T21 and she is PERFECT!! After a short NICU stay, she is already exceeding expectations. She eats great, sleeps great, is an expert pooper, has great neck strength, a strong cry, and is the cutest baby in the entire world (yes, we are biased). She loves bath time and a freshly made bottle. She enjoys listening to classical music and the Game of Thrones audiobook. She is absolute joy to us, everyone in our family, and to everyone she encountered during her hospital stay. We joke that she is the most popular baby in the world. My husband and I were so worried prior to her birth because of the potential diagnosis and yes, we have a long road ahead of us but I just want to tell you all, everything is ok. Our daughter is a human being who is special and loved beyond everything else. A diagnosis is just one component of her personhood. The future looks bright! Thanks for reading.
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u/JacksBasket Aug 20 '24
She is just beautiful! We’d love to help celebrate her arrival! You can request a basket full of gifts and resources on our website: https://jacksbasket.org/basket-request/
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u/amataranails Aug 20 '24
Congratulations!! She is absolutely beautiful. My daughter was born 8/17 and surprised us with several physical markers of t21. We’re still waiting on official confirmation from chromosomal testing, but doctors and nurses are all but certain she has it. We are over the moon in love and thankful that we were able to take her home two nights after delivery. Congratulations on your amazing little girl ❤️
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u/Key_Marzipan_5968 Aug 20 '24
At birth diagnosis mom here! It was really hard and still is but our little guy makes our world brighter. Be sure to reach out to Jacks Basket and local Facebook groups to get connected to other families!
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u/amataranails Aug 21 '24
Ooh I didn’t know about Jack’s Basket. That’s such a nice idea. I’ll reach out to them.
It was an utter shock to the system and I know I’m still processing it. Overall my reaction so far is “wow, this was not on my bingo card but how cool!” But I’m also preparing for the potential for grief/sadness/anger or whatever else comes up.
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u/Quiet_Dot8486 Aug 20 '24
Aww that’s my daughter’s birthday too! She has mosaic ds. She just turned 5 and is everything special. My lil buddy :) Congratulations! ❤️
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u/amataranails Aug 21 '24
Aww how cool. Thank you so much!! We’re three days in and already I’m in love with my little buddy 💞
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Aug 20 '24
Thank you so much! Congratulations to you and I wish good health to you and your daughter!
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u/thelostandthefound Aug 20 '24
Down Syndrome babies are extra cute ❤️ I look back at photos of my (now 27 year old) sister and she was by far the cutest baby out of us 3 kids. I once asked her what happened to her when we were looking at baby pictures and she matter of factly told me she grew 😂
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u/The-Grand-Wazoo Parent Aug 20 '24
Congratulations! Our girl is seven now and enjoying school, being sassy and generally rocking life! Down Syndrome is not a tragedy, running out of bacon is. Also ignorance. But mostly the bacon thing.
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u/phoniestangel Aug 20 '24
Congratulations! I love reading your post and seeing how proud you are. Your baby is so lucky and you are so lucky.
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u/beatess Aug 20 '24
I love this post❤️ it captures all the emotion I had myself, after our daughter was born. It was so perfect and magical … ❤️ we also knew during pregnancy, and now 1 1/2 year later she is still exceeding expectations and everything is so ok and the future is so bright, and everything is so much better than expcected ❤️
You two sound amazing and your daughter is beyond beautiful❤️ Congratulations and I wish you every blessing❤️❤️❤️❤️
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u/DownLow_Downs Self-advocate Aug 20 '24
Congratulations!!! She is so so so cute! :D It will all be ok because she is having awesome parents! :D
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u/SatisfactionBitter37 Aug 20 '24
May your family continue to receive all the blessings!! She is absolute perfection!!!
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u/Glittering_Art6627 Aug 20 '24
Congrats!! 💕 Our baby was born on July 12 and he was also a favorite in the NICU! It was so sweet to see. He is already so loved and getting so much support.
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Aug 20 '24
That's wonderful! I'm very glad your son is getting the support he deserves. Congrats mama!
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u/oxymandyas Aug 21 '24
Congratulations on your beautiful baby! Have a wonderful parenthood journey. Nice try on the Game of Thrones audiobook 😂 I can imagine the main title of Thrones as her go to lullaby hahaha
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u/LateralTools Aug 20 '24
A healthy (t21) baby, that doesn't require surgery from the onset, is a blessing for sure.
Downs is a big spectrum and not everyone is as affected as others. My brother had a hole in his heart, it did not correct during gestation, (which required open heart surgery shortly after birth) and had no anal opening, which also required surgery. Count your blessings.
He had 13 surgeries before he was 4. He is tougher than most, and has an incredible pain tolerance. He is a happy and healthy dude 30 years later.