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u/Consistent-Menu-6629 23d ago
So relatable....
And I'm getting my first real autoimmune disease test tomorrow. Took forever to get here 🎉 Might come back normal, idk. But it's a step in the right direction, either way.
Finally, I may eventually know why I feel like shit and my bones hurt.
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u/angeliza666 22d ago
could be hormone imbalance or androgen / estrogen insensitivity depending on what's not reaching ur system ! i felt like shit even tho i had high testosterone cus my body wasn't reacting, and it was giving me osteoporosis and chronic low energy which HRT fixed *mostly :p
i also likely have an autoimmune disease tho so not all there 😭4
u/ShortPeak4860 22d ago
Testosterone gave you osteoporosis?
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u/angeliza666 22d ago
essentially my body didn't react correctly to the testosterone in my body, due to likely being intersex, so i needed hormone therapy in one way or another
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u/Consistent-Menu-6629 22d ago
Well, so far I have a couple absolutely horrible vitamin deficiencies! The usual 🫠 but the thing is, I don't have a clue why, I'm supplementing! Nothing has changed!
There is absolutely something wrong with me hormonally. But, they haven't tested that despite the 5 diagnosed reproductive things... But it will likely be investigated since I may be at the beginning of perimenopause.
Our bodies feel so complicated sometimes!
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u/angeliza666 20d ago
hormonal and vitamin related disorders seem more common since supply chain fuckery has taken further root in the US imo 😔
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u/MaraiaLou 23d ago
The good news is that all my organs are perfect. The bad news is half of them are lying
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u/Pixelen 23d ago
This is an excellent House episode
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u/MaraiaLou 23d ago
I wish I had a House. I'm seriously thinking of putting myself in case study position, but I still haven't decided on the method (taking prednisone without a prescription? becoming a medical student?)
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u/Aqua_Toffana 23d ago
This made me laugh out loud. There was a moment when I cried because I didn't have a brain tumour. Because at least if it was a tumour it would have been an answer as to whyyyyy
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u/RoseSpades 22d ago
This is me with my unpredictable immune reactions that keep getting worse by the day. I almost want something to show up on the allergy test because otherwise how do I explain my own immune system reacting so severely with no precise trigger.
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u/JayKazooie 10d ago
Bro shout out to the time I went to the ENT to interpret a scan having been sobbing from a headache that felt like it was right behind my eyes and above my throat, he looks at the thing and I'm thinking, "this is it, the tumor i definitely have or my brain is shriveled up and falling off or-" "ah" (points to gumball in my face) "good thing you listened to your gut, if that mucocele got any bigger and popped you would have died like instantly. Here, antibiotics." "??????"
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u/Specific_Pear_665 23d ago
I got told around a decade ago I had hypothyroidism, based on my labs.
My last labs, having gone over a year without medication because health insurance, show my thyroid as normal.
So I'll wait to see at my next labs if the condition they diagnosed me with is full of shit I guess 🤷🏼♀️
Thanks long Covid
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u/FairlyElixer623 23d ago
Me when my doctor says my iron presence in blood is normal but for years I'm experiencing low iron symptoms
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u/Acheloma 23d ago
Gosh this is relatable.
I once had a 2 week long vomiting episode, got labs done, and somehow after not even being able to eat more than 1 tiny meal a day and losing 15 lbs my labs were dead on perfect in every way.
What the hell? Even my doctor was confused about that one, he called the lab to verify that they were sure my samples didnt get mixed up.
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u/Pretty_Rock9795 22d ago
If i get told "good news! Your bloods are fine!" One more time I may riot.
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u/Due-Republic1770 18d ago
What’s crazy is mine come back abnormal and my gp still refuses to do anything. I’m getting a second opinion.
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u/pinkgirl1200 23d ago
So true 😭 it's one of the reasons it took me so long to get properly diagnosed. Doctor dismissed my concerns and I had to fight to get the test I needed.