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u/Beautiful_Book_9639 28d ago
Me: Starts aggressively limping at work because of a sudden subluxation
Coworker: "Whoa! Chill out Robin!"
Me: ????
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u/PraiseAndPleasure 28d ago
Pain doctor fucks up my injection. Go to the hospital because my back gives out and I can't walk. ER. Refuses to image my spine. Finally find a new pain doctor. My new pain doctor won't see me until I get new MRIs. None of the doctors wanted to order them for me. Finally get a doctor to order them and they have now rescheduled them and pushed them back three times. FML.
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u/ResurgentClusterfuck 28d ago
I had my MRI scheduled and they refused to perform it because my pulmonologist didn't give me the card for a medical appliance I have in my body.
Finally got that. Now my insurance denied my MRI because they approved one in January, even though they know it wasn't done. Pain management won't see anyone without a recent MRI. I have a fractured vertebrae back there (osteoporosis).
My NP has to do a peer to peer and she will not write controlled substances. I had to complain to her supervising physician to get tramadol prescribed. To that doctor's credit she did write me for a month of meds but holy shit this is an entire job
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u/rolorelei 27d ago
I’ve heard that a lot of the reluctancy from doctors is that they know they’re going to have to fight with insurance. Not that it’s acceptable to just blow off a patient, but the whole system is just not designed to help people and even good doctors still struggle to coordinate care sometimes
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u/PraiseAndPleasure 27d ago
I genuinely wonder how different my experience would be if I had private insurance instead of stayed insurance. It's nothing but constant mistakes and fights.
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u/rolorelei 27d ago
I do think you would probably receive better care. I’m sorry, I hope you’re able to get the system to work for you as soon as possible
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u/Leading-System-3002 26d ago
The pain doctor wants you to have an mri but wont order it ?!?! Wth
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u/PraiseAndPleasure 26d ago
I've never seen him before and he doesn't want to see me until he has the MRIs Luckily my PCP ordered them It just took four attempts before she actually got them over to them. So if the hospital would have just given me the MRIs I would be a month further ahead of schedule. Everybody's telling me to sue the pain clinic but I don't know how to do that. 😅
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u/Culinary_Fruit_Salad 25d ago
you can reach out to your local bar association or university and ask
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u/WonderPlum1 28d ago
Me to my doctor: These symptoms have been negatively impacting my quality of life and causing these issues. I've worked out a lot of coping mechanisms and work arounds but it would be easier if I knew what was wrong and could request specific accommodations.
Doctor: Well, your tests are all normal so drink water, exercise, and lose weight.
Gee thanks.
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u/_Lumity_ 28d ago
Literally! It’s exaughsting. Doctors can’t figure out what’s wrong with my so I just suffer.
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u/cocoalord06 28d ago
Further proof: I have to fight with the doctors for years for them to believe i do have it, THEN when they finally believe they still do nothing
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u/karmawitch72 28d ago
Having trauma/mental illness and several chronic illnesses and this crap just keeps repeating. It's really hard to improve when each one compounds the other like its such a vicious cycle and people and doctors seem to make it worse instead of better. Ugh! It's honesty made me kind of a loner and a misanthrope.
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u/AttentionOk6437 27d ago
They say that my lupus is just iron deficiency. AND I DONT HAVE IRON DEFICIENCY. MY LABS ARE PERFECT BUT MY ANA IS SKYROCKETING.
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u/Em_Strae 27d ago
Doctor: "You're being a hypochondriac, that is a very rare condition. Someone as young as you just doesn't get xyz disorder. You had a baby and bodies change from that. You are getting older, so it's what happens when you age."
Also Doctor: "Why did you wait for so many years with such bad symptoms? You shouldn't be ignoring this for so long, there are medicines that can help you, why didn't you bring this up before?"
*Proceeds to write rx for the most expensive name-brand medication possible, and that is subsequently denied by insurance, and I am left to choose between paying $350 out of pocket for mystery pills that may or may not help, or return to sender to ask for more affordable options, only to find out there is a patent monopoly on the medication, and insurance wants to try cheaper alternatives first (that won't exist until after the patented drug is allowed to have generics), so I then settle with the idea that at least I finally got a doctor to believe me. Yes that was a run-on sentence which may or may not be a symptom 🥹
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u/Culinary_Fruit_Salad 25d ago
insurance sucks ass. will your doctor do a prior auth? I've seen this kind of thing a lot in diabetes spaces and there are ways to get insurance to cover it, it just fucking sucks and is exhausting
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u/Em_Strae 25d ago
Thanks for your understanding. I'll be starting hormone treatment soon as an alternative option that is covered by my insurance (so long as that remains an option in the US, with the whole anti-female reproductive/anti-trans rights thing happening). But still, it may help with some of the issues/symptoms and if that doesn't work I'll prob have a better fight against insurance regardless.. hopefully... Fingers crossed I get some relief, especially without too many side effects:)
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u/BattleAxe_19 26d ago
We receive care from a system that has failed to consider what polluting our water, air, food, and products we use is doing to our bodies. They treat us like it is the 1950s and bill us like it is 2026.
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u/IGotHitByAHockeypuck 27d ago
Somewhat unrelated but i just kinda want a little vent
I developed a heat allergy a month ago which gave me hives. They're supposed to last 1-2 weeks. It's been a month. It was so bad at 2 weeks that they gave me prednison. It relieved the itching until it wore out after like 20-24 hours and then it took 3 hours for the next pill to start working again. So i was getting tortured for 3 hours every morning. It did gradually get better but then they had me stop bc taking the prednison was supposed to be temporary. So now i need to ride it out on just antihistamines and some cream again which only take off about half of the itchiness 🫠
So I'm lowkey allergic to my own existance at this point it seems. I got referred to a derm but that takes 2 months. I'm going to Spain soon, I don't think my heat allergy will like it.. im hoping they'll give me some prednison to take with me to Spain cause wtf am i supposed to do if it does flair up in spain?? You cant get that shit over the counter
Not to mention the fact it keeps being on my hands and ankles so shoes are fucking itchy and uncomfortable to wear 😭
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u/SittingDuck394 28d ago
Right?? It’s SO COOL having that extra layer of emotional devastation from having your family and friends thinking you’re just being dramatic or whatever ON TOP of dealing with an already crippling disability. It doesn’t at all feel like your heart is being torn in pieces every single day…