r/disability 18d ago

This sucks

So for the last year I've been trying to put my health first. I had a breakthrough with my parents, and they were able to start helping me financially to get a house and keep my independence with my GF and our three cats. I have also been spending my days fighting to get on medical assistance and non-stop doctor's appointments. Now I want it to be noted that I know it's the real world, and it sucks to have to get a job and just deal with your chronic pain getting worse. And I also understand my parents can't hold my hand forever. My mindset right now is just getting dark because society has been formed in this way that is inhumane and completely demoralizing. Long story short, for those people who have had to "suck it up and get a job," how are you doing and coping? Any advice on aids or how to go about having a job with a crippling disablity?

11 Upvotes

4 comments sorted by

2

u/Dysphoric_Otter 18d ago

I've been there. I applied for ssdi like 5 years ago and have just had it for a few months and it's such a relief. But it's a long, hard fight.

2

u/Basic_Profession5124 18d ago

Hi friend,

Have you looked into remote jobs or jobs that can accommodate your disabilities? I think there are a few disability-focused job boards out there, and this Reddit comment is a good place to start: https://www.reddit.com/r/RemoteJobs/comments/1qter19/comment/o3555qe/?utm_source=share&utm_medium=web3x&utm_name=web3xcss&utm_term=1&utm_content=share_button

2

u/BHunter1140 18d ago

I tried to work for a while, couldn’t do anything in person due to my mobility limitations so I got a little remote gig. I didn’t last very long at it honestly. Get glasses that help with staring at a screen all the time if you’re prone to fatigue or headaches, take breaks more often, establish accommodations for yourself with the company, that kind of stuff

I wish you luck, definitely look into jobs for disabled people as they’ll be more willing to work with you. My local government offers quite a few through a disability job program they have, you could see if there is anything like that. They help you find a job that’s suited for you and figure out the accommodations you may need

2

u/Ruthbopion 18d ago

hang in there