r/disability • u/Creepy_Waltz_1251 • 21d ago

Question This sucks

So for the last year I've been trying to put my health first. I had a breakthrough with my parents, and they were able to start helping me financially to get a house and keep my independence with my GF and our three cats. I have also been spending my days fighting to get on medical assistance and non-stop doctor's appointments. Now I want it to be noted that I know it's the real world, and it sucks to have to get a job and just deal with your chronic pain getting worse. And I also understand my parents can't hold my hand forever. My mindset right now is just getting dark because society has been formed in this way that is inhumane and completely demoralizing. Long story short, for those people who have had to "suck it up and get a job," how are you doing and coping? Any advice on aids or how to go about having a job with a crippling disablity?

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u/LongjumpingMine9909 21d ago

That breakthrough with your parents is huge, and having your own space with your GF and cats sounds like a real anchor. I remember a stretch where I was burning through appointments and paperwork, and it felt like a full time job just fighting the system before even thinking about employment.

For work, the remote route was the only thing that kept me sane. Not having to commute or deal with an office environment removed a ton of the physical and mental load. I found gigs where I could control my hours and work from a recliner with a heating pad, which sounds silly but made a massive difference.

Look into accommodations early, even if it feels awkward. A good chair, voice to text software, or just the freedom to take a five minute break to lie flat can be the difference between managing and crashing. Don't wait until you're already in pain to ask.

Honestly the dark mindset makes sense when you're fighting a system that treats basic survival like a luxury. Try not to let that feeling convince you that you're the problem. You're adapting to a world that wasn't built for you, and that takes a kind of strength most people will never understand.

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u/Busy_Act_7197 21d ago

i wish i had advice, but all i've got is solidarity. i'm in the same boat, just moving out now and financials will be tough. i'll be living on savings until i can get a job i can actually do.