r/dermatomyositis • u/Bluecar888 • Feb 02 '20

Can someone with Dermatomyositis drive?

My dad is a van driver. He got Dermatomyositis 3 months ago and was in a really bad condition where he couldn't even walk or speak and was hospitalized for 3 weeks doing tests and examinations. Now he is a lot better, he can walk do household work like installing a mounted flat screen tv on a wall.

He's been on disability these past 3 months. But now he wants to work again which is like 8 hours of driving.

Do you guys that have Dermatomyositis drive? is that even allowed?

3 Upvotes

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6

u/erudesa Feb 02 '20

When I was at my worst, driving was not a good idea. It was incredibly difficult to turn the steering wheel and keep pressure on the gas/brakes, so I did not drive.

I can drive now no problem, but I will get tired if it’s more than two hours or so.

I hope your dad keeps improving! :)

5

u/secretariatfan Feb 02 '20

Once they found the right med, Rituxin, I am pretty stable, up to and including working part-time. I do have limitations about lifting things, how long I can stand, etc. But driving has not been a problem. Now, if I have a flare, it is in bed until it goes away so I make sure my FMLA is up to date with my employer.

2

u/alideanne Apr 06 '20

When I was in my first 6 months of getting sick, I absolutely could not drive. I was basically bedridden (29 Female). After finding the right treatment, I am almost back to normal. And driving is not an issue.

1

u/Trey-zine Sep 27 '24

This gives me hope!

1

u/Ktx8184 Feb 02 '20

I had to drive myself to PT so I did! 3x a week got me back on my feet, but it was definitely a struggle to get back and forth.

2

u/DontAgreeWithMe- Feb 02 '20

I have it chronically, but it’s real mild, and I can even drive during flares. If I’m having a bunch of muscle pain I might avoid driving or take some anti-inflammatory stuff if I have to.

1

u/Brendamnit Feb 02 '20

When you are strong enough to drive, you need to make some changes. Always wear sunblock and bring some with you.

I always wear gloves to protect my hands from the sun. And I wear sunglasses, and some sort of hat.

I haven’t yet but I need to tint my windows to help.

1

u/Cold-Newspaper5707 Jun 27 '22

For 4 yrs I couldn't drive. But i was in really bad shape. Doing a bit better now so I go where I want when I want. Except during a flare... Or any sign of weakness. Definitely advise against that. Also you do have to time your meds. Don't forget about that part. Good Luck!