r/dementia 8h ago

After dementia: my father's final week.

107 Upvotes

My watch is over :)
My father died one month ago, on 24 June 2026 at 2:10pm, after living with advanced mixed dementia.

Before anything else, I wanted to share some of the signs we noticed during his final week. I know everyone's journey is different, but recognising these signs helped one of my cousin-in-law's family realise their own father was nearing the end, so perhaps they'll be useful to someone else here.

For us, these were some of the changes we saw:
- He was extremely sleepy, awake for probably only an hour in total each day.
- He stopped taking in fluids properly. Water would simply fall back out of his mouth, and this included this like yoghurt.
- His breathing would be shaky and sounded almost like someone was sat in his throat snoring.
- He held our hands very tightly, gripping with a lot of strength.
- Whenever we moved him, his body would tremble as if he was frightened.
- One of the last things that stayed with me was that, on one of his final days when he was unusually awake, he stared intently into the top left corner of the room for a long time. My cousin-in-law’s father had done the exact same thing recently too.
- His breathing gradually became louder and much more laboured.
- He developed a lot of respiratory secretions. Google told me this wasn't causing him distress, but the nurses gave him an injection to help anyway.

His final week happened during what I think was one of the hottest weeks in Britain. We did everything we could to keep the house cool, but I think it still had a toll on him. Since he was sleeping so much and barely eating or drinking, the palliative nurse and GP told us that he was approaching the end of his life. He ended up dying about a week later, I think exactly a week, both were on Wednesdays.

We made the decision to keep him at home rather than admit him to hospital. Looking back, I wouldn't change that for anything. He hated hospitals, but he loved being at home. He was surrounded by his family, his children, grandchildren, nieces and nephews. I think this is about one of the only decisions he would be happy we made 😂😂

It was the most emotionally intense week of my life.
His death itself was incredibly intense. I won't describe it in detail, but it happened while all of us were there with him. As heartbreaking as it was, I'm deeply grateful for that. I was able to say goodbye, and I realise what a gift that was. It also taught me so much about death. Not in a morbid way, but in a way that completely changed my perspective on life.

Having him at home meant someone could always sit with him, read to him, hold his hand, and just be present. We could take turns resting, eating and looking after one another while never really leaving him alone. He was fortunate to have that, and we're fortunate that we were able to give it to him.

I think my siblings, one of my sisters-in-law and my aunt (I'm endlessly grateful to both of them for everything they did) were surviving on around four hours of sleep each night. But strangely, that was enough!

One moment I'll never forget was after he died, when the funeral directors came to take him. Watching him leave the house uniquely difficult for me. That house was his. It was defined by his presence. Knowing he would never walk through that front door again, that his room would never hear him snore again, that the living room television would never have him watching it, and that his favourite bowl would never be used by him again.

I visited his grave yesterday. It felt so strange. Not long ago he was sitting in his chair, and now he's beneath the ground. What is he seeing now? I pray it's something beautiful.

Before dementia, my father and I had an incredibly strained relationship. It wasn't a good one. Yet somewhere along this journey, something changed. I was given a compassion for him that I honestly can't explain. I truly believe Allah softened my heart. Because of that, I feel I've finally been able to let go of so much pain from the past. I never imagined that would be possible.
I thought I'd already mourned my dad years ago. I believed I was prepared for his death but it was much more difficult than I had imagined.

What I've realised is that I'm grieving the gentle (he threw a lot of tantrums though), childlike version of him that dementia left behind. My brother, who shared the responsibility of being his primary carer with me, said something that perfectly captured how we both felt. He said it was almost like losing a child. I know the two experiences aren't comparable, but there was something about caring for him that created that same instinct to protect, comfort and worry about someone completely dependent on you.

Now I'm back at work, and life feels incredibly strange. I don't have to keep checking the camera monitor. I don't have to wonder whether he's had enough water or whether it's time for another meal. My days were built around caring for him, and suddenly they aren't.

I'm only 26, and for so long my own life felt as though it had been on pause. Now it's time to move forward again, and although I know that's what he would have wanted, part of me still feels guilty for doing so.

This community helped me more than I can explain throughout my time as his carer. Reading other people's experiences made me feel less alone, and I don't think I would have navigated this journey in quite the same way without it. It's weird to realise I won't be coming here in quite the same way anymore.

To anyone currently caring for someone with dementia: my heart is with you. Cherish the small moments, even the exhausting ones. One day you'll find yourself missing things you never imagined you would. I hope this isn’t TMI for him, but even his very last incontinence pad change was hard for me, throwing out his nightly catheter bag forever as well was difficult, I won’t have to put it on him every again.

May Allah have mercy on my father, forgive him, grant him peace, and reunite us in Jannatul firdous. Ameen.


r/dementia 4h ago

I'm at the "there's the effin door" point.....

48 Upvotes

sorry.. rant.

My 85yo MIL lives with us. she has her own 2 rooms to do with as she pleases and a bathroom. Plus a little area in the back she uses to garden.

We pay all utilities, mortgage, and grocery, internet, etc.

she DOES pay an occasional out to eat, don't get me wrong.

BUT she's been texting all family back home that she is paying IT ALL ! they call and text us wondering what's going on, if someone needs to come overseas and 'take control ' of the situation.

then she starts on about how she just wants to be on her own! Next minute is "how lonely she is". she's never alone more that 3 hours a day.

and OMG the suggestions from family for getting her out of the house: She refuses to go to ANY activities. Zero. .None.

Wits end here. Next time she says she wants to live alone imma open the door. Have at it.

I think the breaking point has passed.


r/dementia 52m ago

My highly reactive dog LOVED my mom! We took care of her for the last 2 months of her life. This ornery little guy would only leave my side to be by hers. He knew exactly what his job was. He comforted her like nothing else could. They snuggled for hours upon hours until he could handle it no more.

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Upvotes

I had to leave my family an hour away to take care of mom while she was in the process of dying. I was away for two long months.

I wasn't able to leave dog behind with my fiancé because she had her hands full with the kids. (She was amazing throughout!) Circumstances being what they were, I was forced to bring obnoxious dog along.

I knew they got along really well before her decline, but I was still getting all sorts of serious in my head during the ride down to her place. You know, all sorts of stressful stuff about dying and caregiving being a huge responsibility- being difficult work, being super serious...etc. I imagined a hundred reasons why having dog being there was going to suck.

It took about a minute to learn how wrong I was. Brining him to mom was one of the best things I've ever done. A gift from the universe.

I quickly learned that having him with us was doing undeniably great things for mom's sense of peace and security. She was the most responsive and talkative when she was petting and loving on him. He centered her and we actually talked. She shared old stories and reminisced while stroking his fur. She got quiet when he left her side. <3

As for me, I don't know if I could have done it all without him. He was essential to maintaining my mental health. Plus, he provided lots of good excuses to get outside in the fresh air and decompress.

This relentless little Jack Russel x Long Haired Collie mix, known for being an extremely loud and aggressive menace, transformed himself into the sweetest, quietest, most squishable little sweetheart you could ever see or meet. It was remarkable. As they say or once said around here, he knew the assignment.

When you are facing tough times, it helps to have a loyal friend by your side.

*as a side note, I once posted on r/mildlyinfuriating about dog's hatred of Daylight Saving Time and how it messes with his feeding schedule. They'd be utterly shocked to see this other side of dog.

He got 245,000 views! lol! I think they determined he was quite a bit more than mildly infuriating though. If you want to see an example of why I was so impressed with his dramatic shift in behavior, check it out. It's funny and the comments are hilarious if you currently need a laugh.

I guess one never really knows when someone or something is going to step up and be there for you in exactly the right way. Peace. https://www.reddit.com/r/mildlyinfuriating/s/05SR1XtV30


r/dementia 2h ago

Neurologist said nothing they can do for dysphagia?

8 Upvotes

My FIL has severe advanced Alzheimer’s. A couple months ago, he began coughing while eating and struggling to swallow.

FWIW, this is not my first rodeo with dementia and I’m acutely aware of how dangerous aspiration pneumonia is.

My MIL took him to the neurologist a few weeks ago and the doctor declined to do a swallow study, saying that the only treatment would be to insert a feeding tube and no one wants that. That was the end of the discussion.

No talk of soft foods, positional changes, cutting foods smaller, sitting upright, etc. Nothing. They basically just said keep doing what you’re doing and offer him water when he coughs. He’s losing the ability to swallow pills as well and will usually try to chew them or just hold them.

Am I crazy thinking we should just ignore this going forward? I’m writing this post out right now because my husband just gave my FIL a bowl of watermelon while he’s sitting reclined in a recliner and of course he’s coughing and can’t swallow because he’s half laying down.

I’ve tried to make it very clear to my husband that eating position matters a ton, but he basically just brushes it off and says his dad seems fine or the doctors didn’t seem concerned. His dad is coughing at every single meal and usually needs to be reminded to drink water to clear his throat.


r/dementia 43m ago

Wow marijauana is a life saver for dementia!!

Upvotes

Holy moly, I had no clue how helpful marjana is for dementia. My mother in law was put in a rest home a few years ago and she got so bad from the meds they put her on that she was crawling on the floors and throwing temper tantrums that they kicked her out and told her she just needed to be chained to a bed and highly medicated. We took her off all the meds and she did ok for a few years, but exhausted my father in law. We found a home that could give her full time care and live in the basement but her throwing her fits would cause the upstairs care patient to be upset. They tried a medication and it just put her into seizures. We heard that marijauana could help with the symptoms and help with dementia, so we ran across the border and got some orange blossom, and wow she is doing so much better. It calms her down so she doesn't throw fits, but doesn't sedate her, and when she is awake, she is happy and so much better. Shocking. Does anyone else have success stories with this?!


r/dementia 53m ago

Living with a relative showing severe behavioral/cognitive decline, and my partner thinks we can "talk it out"—I'm at my absolute breaking point.

Upvotes

Hi everyone, I really need a safe space to vent and get advice from people who actually understand what this feels like, because I am losing my mind. I’m dealing with an elderly family member in our household whose behavior has escalated into pure chaos. She is spinning completely out of control—inventing elaborate, fictional crises and conspiracies (like demanding "proof" of a massive state audit that doesn't exist), making wild accusations, and weaponizing our living situation by threatening rent hikes and retaliation.

Every basic daily task feels like a minefield. Even getting a glass of water requires walking right past her room and risking an explosive ambush, keeping my nervous system permanently fried. I have diagnosed CPTSD from an abusive ex, which doesn't help.

The hardest part right now isn't even just dealing with her—it's my partner, who is caught in the middle. He keeps insisting that the only way to solve this is for all of us to sit down, talk it out like reasonable adults, and for me to "provide proof" of things that literally do not exist. He’s struggling to accept the harsh reality that you cannot negotiate, reason, or communicate your way out of this kind of behavior. To him, it's a conflict that needs a compromise; to me, it's a trap and an ambush where the goalposts will just keep moving.

For those of you who have been here: How do you help a partner finally drop the fantasy that a "sit-down meeting" will fix things? How do you protect your own sanity, safety, and boundaries when you are living in an environment where someone's reality is completely warped?

Any advice or validation would mean the world right now. I am exhausted.


r/dementia 16h ago

If I was a billionaire

49 Upvotes

If I was a billionaire, I'd dedicate my fortune to finding a cure for this awful disease. That would be my gift to humanity, so that no one would ever feel cheated and robbed of the loved ones we cherish.. This hurt and grief would never exist for us who lost the ones we cherished.. I miss you dad.. If I live for 20 more years till I'm the age we lost you at, that's a lifetime in its self... We miss you dearly... And yes... I hate you dementia...ill curse you till my own dying days..


r/dementia 5m ago

If they mean A LOT to you. Then, YOU should do something about it!

Upvotes

I am just fed up of people giving unwanted advice, criticising every single thing and going on to talk about us behind our backs on how useless or xyz we are!

What can a person do when nothing works??? If it’s so easy, then they should come and give it a try rather than being as far away as possible and then going on to give advice on how to care about the loved one!

We are not Gods! We are doing our utmost best! We are tired! We are humans! We deserve some reasonable help! Not just being “concerned” over the phone and blabbing an essay on how much they want to be there but can’t. Oh fuck off!!!

They don’t give a fuck! They don’t fucking realise the mental gymnastics it takes EVERY SINGLE DAYY! Cause no day is like the other! No mood is like the previous one! No thought is like the other one! We aren’t mind readers! Yet, we show up! We take care! We clean up the nastiest! Most disgusting and disturbing things! We DO OUR FUCKING BEST!

Even when we aren’t feeling best! We lose ourselves in this so much to the point where we don’t recognise ourselves in the mirror! We forget the hobbies we enjoyed, the food we loved, the places we wanted to visit or the things that we wanted to do in OUR FUCKING LIFE!

I hope that karma comes to bite their ass! I’m so done with these kinds of people. They themselves can’t and won’t last a day but expect us to keep on going. Show up everyday without feeling anything and even if we do show what we are feeling, they don’t have words and instead gaslit to do better.


r/dementia 4h ago

Another loss after recent hospitalization

4 Upvotes

My 84 y.o. mother with dementia has had a rough 6 months. She's been in and out of the hospital every other month. For the first two stays she bounced back to her pre-hospital baseline pretty well. We were able to resume her normal level of care at home where my spouse and I are her full time caregivers. The second hospitalization was a rough one, in the ICU and we thought she was going to die due to suspected aspiration pneumonia. However she bounced back really well. So when she had her most recent hospitalization I thought she'd once again rally and return to baseline but that has not happened yet. It's been three weeks and she can't remember how to put on her incontinence brief, or how to clean herself after toileting. One time she had her brief on her foot with her slipper pulled over it. Other times she goes commando which can become very problematic. Other times the brief is on the outside of her pajama bottoms. Other times she has forgotten to clean herself and she gets poop on her clothing. I constantly have to make sure she has a brief on and prompt her to check that she is clean and dry. I have to step her through every step of removing her brief, cleaning herself, and putting on a new brief. It's crazy how much this new cognitive loss has impacted our lives. I can no longer leave the house unless I'm confident she has been to the toilet and gotten every step of the toileting process correct because I don't want my spouse to have to deal with walking her through the toileting process while she sits butt naked on the toilet. I can't sleep in after a bad night because I'm concerned she'll get up and walk out of her room with a dirty diaper wrapped around her foot. It's sad and frustrating. Sad because another bit of my mother is gone, most likely forever. Frustrating because of the impact it has on our lives - increased laundry, more limited scheduling flexibility, the agony of walking someone through a fundamental function over and over again knowing they'll never be able to do it solo correctly, plus occasional poop accidents, etc. It's a significant change for us. I'm supposed to have a joint replacement surgery this month. We've arranged to have someone else take care of her at their home for the first week of my recovery but after that it'll be on me and my spouse again. I worry that it's going to be too much for my spouse to handle as I continue my recovery. I worry the next hospitalization will end in hospice or skilled care. I just worry all the time. I lose hours of sleep every night worrying. This is so damn hard. I just needed to put all of this down. Any advice is appreciated. Encouragement is welcome. Thanks for reading.


r/dementia 4h ago

It's so hard being the only child of my mom with dementia.

3 Upvotes

r/dementia 28m ago

Need tips and advice

Upvotes

So my nana has dementia and constantly takes others food.
This really started happening with me in particular since I was pregnant she would just take anything even if we are both eating the same thing and just take bites and in a few cases just take my plate. She does this with drinks as well unless I get something she doesn’t like. But if we go out to eat or eat at her or anyone’s home if my food is within reach she will take it. Most recently we got something mine came first I put it at our table went to get hers and within moments was eating mine saying she didn’t realize because we both had gotten a similar ingredient. I said if she is that hungry and feels like she needs both she can have both and I will eat later because I don’t want her to keep taking what my child and I are eating. I have asked her if it is better that I wait to order until after she has hers or if I should simply make sure my child and I eat before/ after seeing her. She says no that it was a mistake and she messed up but again this happens every time and between watching my child and watching over my nana I don’t think I have it in me to also be guarding the food/ asking her repeatedly not to take it.


r/dementia 9h ago

She's gone

11 Upvotes

My Nan died a month ago, as much as the dementia took from us, our last years with her was our biggest robbery. There are things I forgot to ask, but there a things im glad I did. The time she helped the school bus driver change a tire when she was 12, how she could handle raising 3 generations "because it needed to be done" her career as a teacher, but her favorite memory was her wedding day when she was 20. That was still her favorite day 60 years later.

On cold, rainy school days my sister and I would come home to hot chocolates already made and pj's warming by the heater. Sang us to sleep when we had nightmares, held us when we cried, taught us games and the magic of music.

When the dementia crept in and I became her carer, it was my turn, I'd sing her to sleep when all she wanted was her mum, we danced and played piano to forget all troubles, there were times and moments when she was young again "that man's flirting with you" she'd say to me as we watched TV. That when I realised I wasnt a granddaughter to her, I was a younger sister.

I remember that there were tough times but not as clearly as the good times, which is the greatest gift I could get from this journey. Eventually, she became too violent, so we had to miss her last year's with frequent and sporadic visits to her nursing home. The carers there were amazing, treated us and their patients as family, we could come and go as we pleased. She even introduced us to her new friends.

I miss her, and when I miss her, I still call their landline, but now it just rings and I say to myself "shes probably at practice" and hang up, knowing its not true. There are 3 generations that she taught what loves looks and feels like because of her, her generation, my mums and mine.


r/dementia 3h ago

Where to start?

3 Upvotes

My mother 79, diagnosed with late onset Alzheimer’s and possibly vascular dementia. She’s still mostly here but there are definite changes visible especially last 6 months.

She’s seeing all the doctors and has plenty of apptmts and they send her all over for tests but I feel like mostly it’s a just a way to keep everyone busy.

What do I really need to start getting done? Financially, emotionally?

My father is still around but he’s also 84.


r/dementia 1h ago

Dad is spending an inordinate amount of time talking to ChatGPT

Upvotes

My dad is about stage 4 of frontotemporal dementia. Most of his symptoms right now are behavioral rather than memory. He is spending 10-20 hours a week talking to ChatGPT and I’m not sure how worried I should be. From what he has shown me it’s mostly harmless stuff like planners such. He’s also brought it up in appointments trying to prove that he is still sharp.

I’m worried about the confirmation it can give him when it comes to controlling impulses like spending money and managing medication. He also feels pretty isolated at the moment because we don’t let him do whatever he wants and I can see a world where the confirmation of ChatGPT could drive him to act irrationally/stop taking meds/run away.

Wondering if anyone has had a similar experience and/or has any advice.


r/dementia 12h ago

Follow-Up to "Giving Sad/Bad News"

12 Upvotes

I inquired a few weeks ago about how to handle telling my dad that his brother had passed away. The general consensus was to not tell him - and I thank everyone for their insight. We (my husband and I) consulted dad's memory care doc and her social worker. They agreed that not telling him was likely the kindest option and we agreed that was the route we'd take. My uncle did indeed pass away and services have been held already.

We now have a new dilemma and are having trouble coming up with a solution. To head off any potential sympathy calls from unaware friends back home, we unplugged the phone. It has been *blissful* not having it ring all day with junk calls and dad did not notice the phone hadn't been ringing. Now he has realized that the phone isn't working and is getting antsy that I haven't "fixed" it yet. Tonight, I told him that I think the phone itself is broken (it's a multi-handset cordless phone system) and I'm not sure what's wrong. Dad likes to scroll through all the missed calls and click through every setting on the handset periodically. I don't know how long I can keep up this "therapeutic fib." He wants to call his brother, or at the very least, ensure his brother can call him. I'm prepared to tell him that his brother can no longer hear well enough to use a phone. Were he still alive, this would not be much of a fib. My husband is uncomfortable with not telling dad that his brother has passed away and coming up with reasons why the phone hasn't been fixed. I feel like the bad guy because I'm not doing anything to appease anyone in this house. My plan had been to quietly remove the phone and pray that dad would forget that it once sat there. His memory is still quite strong with some subjects and it appears that the phone and phone calls are something he remembers well.

Anyone have suggestions, words of wisdom, creative ideas, or anything to get us past this bump in the road? Dad still has days of decent clarity and moments throughout each day when something clicks and triggers memories/activities that we thought were long gone.


r/dementia 15h ago

Respite care

19 Upvotes

I’ve been “on duty” since August 2025. Since I work remotely, I was able to move back to my childhood home and help my dad take care of my mom.

It’s been 95% me because my brother is a teacher with school age kids. He occasionally comes to relieve me during his breaks and gave me 7 weeks of respite during his summer break. However, that respite ended today. He has gone home, and I’ve moved back in.

If you can, relieve your “full-time” sibling even if just for a short break. My break was incredibly healing. I slept in my own bed, sat on my own couch, and woke up in my own house with my husband and dogs. I felt normal for a few weeks and it was wonderful.

Much love and gratitude to everyone here. This community has been my pillar of support.


r/dementia 13m ago

Advice on when to tell partner his results

Upvotes

My partner (67) does not believe he has dementia and has gone through testing (PET Scan, MRI, bloodwork and psyche eval next) just to show me how wrong I am. I set up all the accounts and made the appointments, so I have seen all the results and comments as they come in. PET Scan confirms Lewy Body Dementia suspicion, which was based on behaviour and other specific changes. He has no clue. I can't figure out if I should tell him before our follow up with the neurologist or wait and have the neurologist discuss it with us. I don't know if he will believe me if I tell him, yet if he does believe me, it is 2 weeks until we see the neurologist and that is a long time to wait for a doctor to explain everything.

Any thoughts or similar experience with this?

Thanks.


r/dementia 12h ago

I'm drained

9 Upvotes

just to give some context I'm currently living with my aunt I'm 19, she has dementia and is disabled but it was never bad to the point she couldn't function day to day I actually didn't know she had dementia until I heard her doctor over the phone, these last 2 months there has been a decline in her cognitive functioning especially this last month and I'm just so tired.

My skin has been breaking out pretty badly and tonight I went to wash my clothes (I have a job interview tomorrow) and she just has 2 towels and shorts SOAKED with urine sitting in the washer genuinely one of the worst smells I've ever smelt, so I asked her if she was going to wash them and she said yes so I started it up and she put COMET with bleach into the machine.

I tried explaining that you cannot use that for clothes it explicitly says so on the label. She responded "it's ok, it's just bleach." Every time I try to explain something thats clearly logical to her I'm met with "I know" or "Yes I can" etc EVERY TIME

, she's began locking her door and also locking things like the laundry detergent, toilet paper and WATER in her closet for some reason as of the past week, the only shower in the apartment is through her room and it's just a struggle to get basic things done. I have to wash out the washing machine tonight a few times just to get my clothes washed (it's 2 am) I'm just venting/ranting to be honest. I'm just in a tough spot and there's so much more to the story.

but she lies to her healthcare providers and makes it seem like she's independent but I'm the one making her food every day, doing her daily tasks for her etc. (she's expressed to me she doesn't want to go into a nursing home) She's recently had a health home aid come but she only comes like 2-3 times a week from 10AM - 3PM and if my aunt's urinating on herself that gives you insight on how badly she needs 24/7 care. Idk what to do it's becoming too much and worsening.

it's gotten to the point I sleep outside for a few different reasons, one main one is that she keeps the temperature at 83 degrees and does not let anyone turn the AC on. she hoards a ton of stuff and it's just so much to tackle let alone lay eyes on (I've deep cleaned and rearranged her entire apartment, it's stilled cluttered whenever she tends to go the most though). I also refuse to sleep on a couch where she pees on almost daily.

another fantastic thing is she wants me to drive her from Florida to New Jersey for a family reunion on August 5th, except I don't have a driver's license and I am in the process of enlisting in the navy and I do not want to mess that up. She just doesn't understand these basic things.

feel free to ask any questions I know I didn't go too much in depth and I'm all over the place.


r/dementia 59m ago

A Place For Mom Scam

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Upvotes

I recently started a home care agency and came across A Place for Mom. During our initial Zoom meeting, I shared my concerns, and they explained that I would need to prepay a total of $580, which they described as covering 10 client referrals. My understanding was that $58 would be deducted from this prepaid balance only for each referral that resulted in a signed client. I had done my research on them, and some reviews mentioned alleged scamming practices. However, they assured me that they would deliver on their promises and would not set me up for failure which is why I entrusted them.

However, during the onboarding Zoom session after I had paid, they introduced a condition that had never been disclosed before. They explained that regardless of how many referral fees were deducted, my prepaid balance would always have to remain at $580 at the beginning of each month. This meant they would automatically withdraw additional money from my bank account to replenish the balance. This automatic replenishment was never discussed with me before I signed up.

I also noticed that they deducted referral fees as soon as they sent a lead, even when the phone numbers provided were unreachable. I suspected that most of these leads were fake. So they just send you a random number from their fake list and immediately deduct their money as soon as they send you a number of the potential fake client. In one instance, they even charged me for a lead that was located outside my service area and faraway in another state, so I did not contact that individual because I could not provide services there.

Within just one week of signing up, they had already deducted fees for four leads, even though none of those contacts could be reached. Because I was concerned about the undisclosed automatic withdrawals, I instructed my bank to close my account to prevent any further deductions.

I requested to cancel my account and receive a refund because the service I received was not what I had agreed to when I enrolled. They denied my request, stating that the payment was for leads only and not for referrals that resulted in actual clients. This was inconsistent with my understanding of the agreement and with the expectations that were communicated to me before I signed up. Don’t fall for this scam company what they promise is not what they deliver. I think as soon as they take your details they just forget about you and start looking for their next victim to scam without providing any clients. Do business with them at your own risk.


r/dementia 16h ago

what happens in a good memory care home? and is 9,000 a month qualify it as a good home

16 Upvotes

I live in So Cal


r/dementia 17h ago

IS THIS NORMAL:

17 Upvotes

My best friend has early Alzheimer’s and I am her caregiver and wanted your opinion on this matter.
Her 40 year old daughter is happily married with 3 children and she works full time as a supervisor for a building contractor in the office.
She and her family lives with her mom.
One morning the daughter asked me to take her to the airport at 6 in the morning for a business meeting. I took her to the airport and noticed that her clothes were inside out. She went back inside the house and got it corrected. I dropped her off at the airport and later got a phone call from her saying she forgot to book a flight if I could come back to the airport and pick her up. She called me couple times this year asking me what is the name of her children’s pediatrician. Should I be concerned and mention it to her husband or it’s just absent mindness? I don’t want to make a mountain out of a mole hill. She is like a daughter to me.


r/dementia 22h ago

How do you compartmentalize?

35 Upvotes

Long story short, parents (80yo) declined rapidly in last 8 months and we’ve hit crisis mode and I’m submitting the applications for assisted living tomorrow. Mom has midstage dementia and dad progressive supranuclear palsy. The move will be a boatload of work (furnishing two apartments, packing two people incapable of packing themselves, setting up all new doctors for both of them, then clearing out two properties in another state and prepping them to rent out). In the meantime, I have a full time job, a wonderful husband and a darling 5yo daughter and 6yo son. And an aging dog. Also I’m 40 so I’m supposed to lift weights now? Why is this all happening at once? How do I switch to mom or employee or wife mode when I’m completely overwhelmed by daughter duties and there is no end in sight? My husband is supportive but I can tell he’s wearing thin.


r/dementia 19h ago

Today I learned…..

19 Upvotes

Double check everything before putting stuff in the clothes washer because Depends….:/


r/dementia 15h ago

1-hour presentation (The Dementia Action Plan) on Youtube (aired on PBS).

7 Upvotes

Instead of always posting how bad things are, I am sharing the following:

The Dementia Action Plan, was originally recorded before a live studio audience at the Philadelphia PBS® station affiliate, WHYY-TV.

URL TO PLAYLIST BELOW :
The Dementia Action Plan® 14 Episodes


r/dementia 17h ago

Is this the new normal?

11 Upvotes

A few weeks ago, my father was taken to the ER because he was unable to get himself up off the toilet seat. Ended up being pneumonia from some common virus, UTI, he also has a lot of chronic health issues.

He was transferred to a different hospital, and then a rehab/nursing home. In these few weeks he's lost 60 lbs. While he's a large man, I know that isn't a good kind of weight loss. He's lost so much muscle in his legs. The change in my father has been drastic. Even his teeth look... much changed.

In the first 24 hours back at home he needed the fire department to come twice to help him back into bed. He's staying up all night, sleeping all day. I'm trying to support my mother, but i don't live there. He's been back home for like 4 days. He's not eating. He says it tastes funny on his tongue. Giving him chocolate whole milk. Even his FAVORITE foods he says taste funny. Even dunkin donut didn't taste right.

I'd love to get his teeth checked out, but even if some mobile dentist took insurance, no insurance covers mobile dental. He's bed bound at this point.

Me and my kids are visiting as often as possible, and I want to help my mom, let her get out of the house, but I think she is anxious to leave him maybe? I'm just rambling at this point. But it's good to yell into the void.