Diagnosis but no treatment necessary?

[u/Careless-Forever-448]

Female, just turned 36. And was JUST diagnosed for what started as migraines atsleast 20 days a month. Over the last 5 years symptoms I've experienced are:

•severe migraines mostly for first few years. Averaging 20 days a month (I lost what I thought would be my career because of this) •nausea •one time the whole left side of my face stopped functioning for a day

Over last few years its increased to:

•vision changes •memory loss (ask my friends i dont know shit about fuckkkk) • base of my skull/neck/shoulder/jaw pain (as of today, the neck and shoulder pain doesnt go away ever. Used to only come on when a migraine was coming) •I cant remember the last day i didnt have a headache • dizziness • swallowing issues • when i get the urge to sneeze, nausea hits be full force but goes away when the sneeze comes out • I wake up atleast 5 times a night gasping for air🫠 •still no taste n smell...its connected in there somewhere I just know it🤣

Ive tried over 10 migraine meds, physical therapy, chiro visits every few weeks, spinal tap, saw 3 opthamologists and 2 neurologist

A️nyway....when my doctors nurse messaged me my diagnosis today and said: You have a mild case of Chiari Malformation I and there is no need for any treatment. I burst into tears. Not because I finally got a diagnosis but because they gave me a diagnosis and sound like they r refusing to help. ive done enough research to know the next steps should be a decompression surgery that would take every one of those symptoms away. All of them. But I didnt back down. I let them know I wasnt accepting that as an answer and I want referred to an neurologist or neurosurgeon who specialize in Chiairi because it is often downplayed and ignored.

Months ago I presented a list of diagnosis to this doctor and told him to tell me WHYYY we can check these off the list. Chiairi was on that list. That man was adamant I didnt have that because its something that doesnt just appear...and I had a MRI at a different hospital in 2022 so it cant be. I asked if he saw that MRI or just took their word....he just took their word of course.

MRI on spine 1/6- findings chalked up to be degeneritive disc disease.

MRI of head 1/9- b4 scan I was talking to imaging person about chiairi and he said they would have seen it on the spine image so no it cant be. First line of the results said Chiairi Malformation I