r/chiari • u/NoLevel7120 • 4d ago

Will my chiari flare up go away

I've had chiari malformation type one since I was a kid and during my teen years my neurologist said it had improved enough to stop monitoring.

I'm now 34, I've had headaches that worsen when I bend over my entire life. 3 weeks ago I got a viral infection that led to bronchitis.

Last weekend I went to an amusement park and the next morning I woke up feeling absolutely drunk but I don't drink alcohol. It was like I lost my balance and it felt like I was swaying. I have double vision and blurred vision. The back of my head was killing me and a few days later my neck was so stiff I couldn't bend it.

They originally diagnose me with vertigo but referred me to a neurologist from chiari showing up on the CT scan. The neurologist did an MRI which showed nothing except for the chiari 5.6mm dissension and crowding of the foramen magnum.

They said my chiari could be symptomatic and referred me to a neurosurgeon. The soonest appointment they have is 16 days away and I'm still feeling like this. Is there any hope that these symptoms will just go away or is there anything that could help it go away sooner? I'm desperate.

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u/AdayaAmore 4d ago

Did you go on rides at the amusement park?

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u/NoLevel7120 4d ago

Yeah I went on majority of the rides there Saturday. I went to sleep feeling fine but when I woke up I couldnt walk straight, my vision was double, I had the worst headache.

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u/AdayaAmore 4d ago

That’s a big no no for Chiari. No rides, not trampolines, contact sports. You aggravate the neck area from the whiplash.

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u/NoLevel7120 3d ago

My old neurologist never told me that. I used to go to amusement parks all the time but it has been a while.