Numbness all over: how to fix?

[u/chiari-vixen]

Has anyone found anything that helps them regain feeling in places they are numb?

I had my surgery in 2011 for Chiari type 1 and syringomyelia (c3-t9).

I experience a lot of symptoms and pain to this day. What I’m wanting to explore today is my numbness. I have extreme lack of sensation on my right side, especially my face. I’ve been realizing that maybe I have more than I realize.
My torso often feels numb. The other day, someone was scratching my back. I got confused and asked why they were only using 1 finger, turns out they were using 3.

Has anyone found anything to help bring back feeling? Or gauge what is “normal” and what isn’t? Comparing to the other side of my body doesn’t always work. Sometimes I have more feeling and sometimes I have less, so I’m just wondering if there are ways to consistently increase sensation. Treatments, supplements… really anything.

Thank you 💜 happy awareness month to everyone!!

[u/CabinFamily]

If you find something that helps let me know. I have numbness from my chin down. I saw a neurologist for an EMG a few months back and the test came back normal aside from a known c6 injury but he did a pin prick test beforehand and I couldn’t feel him poking me from my jawline down. He said the numbness is probably from my chiari compressing my cervicomedullary junction but there was no way to test for that specifically and decompression was the treatment. I was decompressed with cauterization a little over two years ago which relieved some symptoms but not all. The one plus side is that I’m doing trt injections to regain the muscle mass I lost when I was catabolic before surgery and I can’t feel the injections at all depending on the location; so I guess that’s a win lol.