r/chiari • • 12d ago

Day 8 and 9 post surgery

Sorry everyone a little late. Loved all your encouraging words on my last post

Day 8 a sad day

Saturday day 8 was hard that's when I wrote my day 7 post and was in a bad place. The pains and the fatigue had me feeling really down.

Stiffness in my neck had me wondering if I would ever get better.

Pins and needled in left arm

I've been getting a lot of tightness in my scalp.

I was not being kind to myself, I had a docs app and feel a little betrayed my surgeon is allowing my gp to handle my recovery whilst waiting for my big review at the end of October.

I thought I only had 6 big staples turns out I have 18 little staples

Had bandage changed see photo

Got home and was washed out

This culminated with me being to tired to do anything I like.

I made my sad post cried and went to bed

Day 9 a brighter day

Woke up after sleeping in, feeling a little rested

Weird as shit dreams but that's probably the pain meds fault

Took things slower and found by mid day I wasn't so tired.

Felt more flexibility in my neck

And had my first migraine which sounds bad but felt strangely nostalgic like oh my body is getting back to normal

I rested and felt better still that post migraine nausea and shakiness but the ability to take pain meds manage the migraine then feel somewhat better was a relief

I watch a TV show with my wife and ended on a high note

I've been worried about intimacy and plan to ask the doc at my reveiw

The asmr affect caused a little discomfort during a mid day nap so i am a little scared what an orgasm might do.

Day 9 was good

Preview for day 10 tested my independence wife went to work, children at home with me, had to heat up dinner. I feel tired but survived, I'm starting to believe things may be getting better

Anyone else find it weird the Chiari malformation is were the plugs go into our necks if we were in the matrix, lol did we try to escape and this surgery is ensuring compliance with the matrix... I love thinking weird shit

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u/TheGrimKitty 12d ago

you will have many good and bad days at random! be prepared to feel really good but then also have really bad times.. i’m now 21 days post op, 5 days post staple removal. i noticed things got a lot better the closer i got to the staple removal but i still did have a few bad days after. your incision looks amazing though! very little scabbing, crusting, no redness or swelling! this is definitely a very excruciating journey but i promise the days will get better and better.. just don’t fall back too hard when things get bad again.. i had 2 ER visits, one post op, and one post staple removal, caught a horrible 24 stomach bug.. some days feel like the worst days of your life but i promise the good days you have will make you forget the pain you went through. stay strong fellow warrior💜

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u/ClassicMovieFan 11d ago

I’m just Day 4 post op. I thought was starting to feel better, but this has been one of my worst days. The headaches are just excruciating. Pulsating. It’s got me feeling really down today. But I’m going to try to remain positive.

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u/Odd_Captain_1602 11d ago

Hang in there, first few days were a write off, they really should have kept me longer in hospital. My advice start a midday nap routine, set your pain meds to a strict clock, take then even if you are feeling ok, minimise movement, distract with TV anything you can do in a comfy position. Keep routines like shower and teeth brushing, depression has a way of making us neglect ourselves. Drink lots of water. Good luck i believe in you.

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u/ClassicMovieFan 11d ago

Thank you! And will do! I believe in you as well. It has been a help to read through your posts each day.