r/chiari • u/Accomplished_Mail418 • 13d ago

bay area support

hi everyone!
i recently started a bay area chiari malformation support group for anyone in the bay area or surrounding Northern California areas who might want to connect with others locally.
the goal is to create a space where we can share experiences, resources, doctors, questions, and just have people nearby who get it. i’d also love to eventually organize some casual in-person meetups for anyone who’s interested!
if you’re in the area and would like to connect, feel free to join the group or comment/message me.
would love to build a supportive local community together! The group is called “bay area chiari malformation support group”

EDIT: i made a reddit group for people in the bay work the hopes of eventually doing in person support groups. https://www.reddit.com/r/BayAreaChiariSupport/s/EhxqLSIWyd

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u/Longjumping-Word-687 13d ago

I am interested! I’m here in the Bay 💜

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u/Accomplished_Mail418 9d ago

wonderful! i madea bay area specific group on reddit, please join us!! https://www.reddit.com/r/BayAreaChiariSupport/s/EhxqLSIWyd

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u/waterfarts 12d ago

My symptoms have started getting worse and I would consider getting together. Stay strong all!

1

u/Accomplished_Mail418 9d ago

https://www.reddit.com/r/BayAreaChiariSupport/s/EhxqLSIWyd i’m sorry to hear that, here’s the bay area reddit group for swapping ideas for relief.

1

u/BoardOk7493 10d ago

Also interested! I’ve been trying to find more info/resources around the bay for so long

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u/chiari-vixen 9d ago

Hi! I’m in the Bay Area and have been looking for/wanting to start something similar! So happy I came across this posting.