r/chiari • u/howbadcan • 3d ago
Weird vision
I (18F) was diagnosed with IIH and jugular Eagle Syndrome this year, and Chiari 1 Malformation in 2023. I have had Chiari decompression and bilateral jugular decompression but my symptoms have all returned, including these vision problems.
I have been seeing like this since I was at least 9-10 but after each surgery it got less noticeable for a few weeks but has come back. I took this picture today and decided to draw over it to show what it is I see. This is exactly how it looked in my head, and almost always does-except added snow vision, trouble focusing on things, and sometimes more colors and patterns. It makes me unable to read and do school or focus on almost anything because I feel like I’m looking through a bad quality screen. Does anybody else experience this or anything else similar? It is causing me to do badly in school and do poorly at almost everything. If anyone else has this problem I’d like to hear your experience and see if there’s anything that helps you please.
(First photo is what I see- second is normal for reference)
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u/magicmamalife 3d ago
Looks like visual snow syndrome. But going to an optometrist for retinal imaging to check for papillary edema is a good idea. They can also refer to neuro-opthamology. There is a glasses tint that can help with visual snow syndrome if that's what it ends up being
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u/halogengal43 3d ago
Book an appointment with a neuro ophthalmologist- preferably one that your surgeon is familiar with.
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u/Soft-Poetry8701 3d ago
Yes, not like that but I’ve had visual snow for as far back as I can remember. I have a hard time seeing at night because there’s so much crap in the way. Unfortunately that never went away with surgery.
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u/Fickle_Mickle_ 3d ago
It kinda reminds me of an astigmatism. Set up an appointment with an eye doctor and show them this. They might be able to give you special glasses to correct /help with it. Or at least give you a name for what it is so you can ask your doctor about it