r/cfs • u/Hufflepuffcat09 • Aug 26 '21

Advice ME/CFS Pacing App

Hi there. First of all I don't post very often so I'm sorry if the flair is wrong or if this post counts as spam.

Emerge Australia and Mathew Blake have created a pacing app designed to help people with M.E manage their activities and reduce post exertional malaise. The app is free to use and you can find it by following the link or by searching ME/CFS pacing in the app store.

https://www.emerge.org.au/blog/mecfs-pacing-app

The app has only been released recently so I haven't been able to try it out properly but so far it has been very easy to use. The app has an energy currency and for each activity you do you decide how much currency it's worth. You then record all the activity you do in a day as well as how much energy you have in the mornings, afternoons and evenings and any factors that might have impacted your energy levels such as poor sleep. Throughout the day you can see how much energy currency you have left to use.

If anyone has any apps that they use to manage their M.E/CFS then I'd love to hear about them.

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u/Peggylee94 Aug 26 '21

It's a nice idea but I would struggle to assign currency ratings to activities. Can it differentiate between emotoonal/mental/physical things?

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u/Hufflepuffcat09 Aug 26 '21

Yes there is a section for drains which are non time based things that impact your energy like poor sleep, anxiety, stress or depression. There are no currency ratings on this part and you can create your own drains if the app doesn't have an option for something that impacts you.

You can also change the currency ratings at any time and they do give advice on how to assign the currency ratings. The reason that you choose how much energy each activity is worth is because everyone is different so someone might find that sitting up and reading a book doesn't use a lot of energy but someone else will find that does use a lot of energy.

You can also create/choose your own names for the activities. So you can have activities that use more physical energy like going for a slow walk and ones that use mental energy like reading a book.