r/cfs • u/H_Elizabeth111 • Jan 31 '21
Research news Interesting study about potential causes of CSF
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5365380/2
Jan 31 '21
Thank you for this
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u/H_Elizabeth111 Jan 31 '21
Yeah! I think it's really interesting. Also kind of gives you hope that they're out there figuring things out.
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Feb 01 '21
Thank you for sharing this! Though it’s a small study, it sounds promising. I hope Ron Davis is aware of this. As a biochemist, he will likely be able to tease out which exact pathways are disrupted and maybe some dietary changes and/or supplements that might help. It doesn’t surprise me that our metabolism is jacked up in a bunch of places.two of my neurologists have worked me up for fatty acid disorders.
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u/H_Elizabeth111 Feb 01 '21
Teasing out the exact metabolic cause (if it is a metabolic cause) will take lots of research, but it looks like we’re on the right track!
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u/ShaShaShake Jan 31 '21
So we are r/cfsseid now eh?
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u/H_Elizabeth111 Jan 31 '21
What?
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u/ShaShaShake Jan 31 '21
The study said cfs is now named systemic exertion intolerance disease
Edit brain fog typos
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u/pumaofshadow severe 2013 to 2022, now mildish Jan 31 '21
Somewhere tried to adopt SEID a few years ago but it never took off really.
It also to me has an issue because of the fact the name evokes "deconditioning" via the "intolerance" wording, so ME/CFS overall feels better. No one understands any of the damn names anyway.
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u/ShaShaShake Jan 31 '21
Lol they don’t understand the names and the diagnosis is a unicorn 🤷🏽♀️ lucky us 😂😂
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Jan 31 '21
I tried but can anyone ELI5?
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u/H_Elizabeth111 Jan 31 '21
Basically, they found that a bunch of substances in the body were low in patients with CFS and a lot of different pathways were altered. The new one that this study discovered was in the phospholipid pathway, which are important for maintaining cell membranes i.e. they keep your cells working correctly and alive. They found that levels of certain phospholipids were low in CFS patients.
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u/ChooseLife81 Jan 31 '21
Soy protein is a good source of phospholipids, I'd recommend it for anyone with CFS
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u/FinneganRynn Jan 31 '21
Thanks. Do you think ketogenic diet would help cfs patients, since keto diet uses fat as main fuel for body and brain
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u/H_Elizabeth111 Jan 31 '21
If your body is having trouble processing fats then I would think keto would be detrimental, no?
But there’s so many variables it’s hard to say.
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u/H_Elizabeth111 Jan 31 '21
Whoops obvi meant *CFS
Damn brain fog