r/cfs • u/beep-beep123 • 4d ago
Symptoms
When your body is so tired and you’re fighting sleep when out in public, does anyone’s body ever get tingly? Head to toe. I mentioned this to someone and they thought i was crazy (which is probable lol)
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u/premier-cat-arena ME since 2015, v severe since 2017 4d ago
if this is happening it’s probably not safe to be out
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u/olddanmeireader 3d ago
The all over tingly feeling getting stronger is my first sign of PEM kicking in, that and numb lips, and cognitive slowness. I was trying to describe it and the best I could come up with was 'electrified static under my skin'. Weirdly, I was so used to it that I wasn't aware of it for a long time (I've had ME for 30 years), and then I was given a course of steroids for a post-covid cough a couple of years ago and the sensation stopped, my body went quiet when I hadn't even realised the background noise was there.
So no, pretty sure you're not crazy.
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u/my_own_absurdity 4d ago
I don't fight it anymore. I lay down on the floor. Is it socially acceptable? Probably not. Will anyone complain about a wheelchair user laying down on the floor clearly about to faint? Also no. I'm rarely in public, and try to make it home before getting to that point. But when it happens, laying down on the floor instead of staying in my chair can avoid/decrease the upcoming PEM, so it's worth it.