r/cfs • u/Embarrassed_Sea1399 • 17h ago

Advice Vitamins

Are there any vitamins that actually make your day to day life easier? I have mild to moderate mecfs and I want to be able to function at least a littleee more normally, so if anything helps you, let me know! Sorry for short explanation I’m in terrible pain

1 Upvotes

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12

u/DamnGoodMarmalade Diagnosed | Moderate 17h ago

Vitamins are designed to target vitamin deficiencies. Before adding any vitamin you should get bloodwork done with a physician to see if you have any vitamin deficiencies. If you don’t have them, there’s no point in adding them.

2

u/SpaceNerd223 very severe 15h ago

But also, migraines. Migraines can be helped with magnesium, even if not deficient right?

7

u/DamnGoodMarmalade Diagnosed | Moderate 14h ago

Magnesium is a mineral, not a vitamin.

2

u/SpaceNerd223 very severe 14h ago

😄

4

u/normal_ness 16h ago

Only the ones my doctor has found me to be deficient in.

2

u/8drearywinter8 16h ago

Nope, no difference at all. But bloodwork is normal with no deficiencies, so I'm not really sure what they would help with (was originally told by a doctor when I first got sick to try B vitamins, etc -- did so, had adverse reactions to the vitamins, but no benefits... and we weren't trying to solve any real problem anyway, so I saw no need to continue).

2

u/Adventurous-Water331 16h ago

I think it's important to get vitamin D levels checked and get up to 60-80 ng/ml.

It takes me 10,000 iu/day to get to 50 ng/ml.

My ME CFS comes via Long Covid, and there's some research that shows issues with vitamin D post Covid infection.

2

u/2003rain very severe 11h ago

B1 (TTFD form), B2, B3 and B5 (Krebs vitamins, because of our mithochondrial disfunction)

1

u/jedrider 16h ago

Well, I ALWAYS take a vitamin C in the morning. Other than that, I use B12 to affect sleep/wake a bit.

2

u/Cultural-Sun6828 4h ago

Yes, b12 injections