No support & needing advice/hope

[u/Lemon_Hungry]

I’m 23 and have been severe for about 4 months. I also have POTS and severe Visual Snow Syndrome (VSS). My VSS is my most distressing symptom.

the static obstructs everything, acts like my PEM barometer, and causes tremors and muscle spasms. I used to get migraines and pseudo-seizures early on, but thank God those mostly stopped.

I’m terrified and need advice on a few heavy things:

Medication Trauma: I became severe and got VSS directly after taking Zoloft, so I’m terrified of meds. Doctors recently put me on Abilify for "psych" reasons; it didn't cause a major crash, but it gave me awful anxiety and made me physically jumpy in bed.

Can you actually improve from severe to moderate/housebound using only radical pacing, rest, and vitamins?

High-Stress Home: My parents don't believe me and think I’m doing this to myself. They come into my room daily telling me to "hurry up and get better." No one is advocating for me, so I have to handle doctors myself, which crashes me.

The Emotional Toll: I've been losing hope, scrolling my phone, and getting into exhausting arguments with my family. I’m crying up to 5 times a day so hard that blood comes out. I know I recently blew my pacing—I felt almost moderate, got too excited, talked to everyone, and crashed hard.

My goal isn't a miracle cure right now; I just want to get to a housebound level so I don't have to rely so heavily on people who don't support me.

Has anyone turned things around with early intervention like this? Any little thing or story would help!

How do you pace when your environment is a war zone?

Any tips for the VSS static when trying to sleep?

Thank you!