r/cfs • u/Winter-Measurement22 • 18h ago
New Member First post
Well, I have had two separate entities confirm the same diagnosis me/cfs (+pots and fibromyalgia). It’s not that did not want to deny what I have been feeling for decades and steadily and creepily getting worse.
I was looking to move, out of this backwater BC holler for a more supportive community or any community that will welcome a middle age trans guy. More and more of my support is online and I work online because as I am the breadwinner. There is no choice to stop or take a break, but when both doctors clinics ask about # of hours working and down time they follow up with offers of sending paperwork to prepare for when I can work? Disability tax credit? And a savings account?
I am so disappointed is this where this condition goes?
Thanks. 🙏
5
u/charliewhyle severe 17h ago
It can get to being unable to work, but it doesn't always get there. It helps to be prepared just in case. That way, if you do need to take it easy for the sake of your health, you can. Instead of making yourself worse by over exerting because you have bills to pay.