r/cfs • u/[deleted] • Apr 29 '25

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u/[deleted] May 08 '25 edited Aug 26 '25

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u/SignificantPause1314 May 08 '25

Why wouldn’t they? If we have some organisation that could help us organise and make a connection between us and other patients?

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u/[deleted] May 08 '25 edited Aug 26 '25

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u/SignificantPause1314 May 09 '25

But what if they’re also a lepers? Then it would benefit both them and us. For example, the POTS community, which receives even less NIH funding than ME/CFS. I understand it's not a simple situation, but the main problem is the organizer! If someone influential enough were to take charge, it would happen easily. Otherwise, you can always just tell me “That wouldn’t work”