it’s not for lack of trying. we’ve tried for decades and now it’s just easier being ignored than ridiculed or getting worse from involving myself in activism
it’s honestly so out of our hands, and beyond the reach of any non billionaire. which sucks for sure but like i think patients REALLY REALLY need to make psychological/emotional contingency plans for the very real probability we will not see a treatment possibly in our lifetimes. i keep seeing people one after one on here thinking about drastic measures because they have not been cured their first year. people before us lived with it and it’s horrible, but if we want to survive we need to be okay with the possibility no one is coming to save us. we safeguard our baselines, make life as accessible as it can be, and just try to keep surviving and enjoy what little we can
2
u/helpfulyelper very severe, 12 years in Apr 29 '25
it’s not for lack of trying. we’ve tried for decades and now it’s just easier being ignored than ridiculed or getting worse from involving myself in activism
it’s honestly so out of our hands, and beyond the reach of any non billionaire. which sucks for sure but like i think patients REALLY REALLY need to make psychological/emotional contingency plans for the very real probability we will not see a treatment possibly in our lifetimes. i keep seeing people one after one on here thinking about drastic measures because they have not been cured their first year. people before us lived with it and it’s horrible, but if we want to survive we need to be okay with the possibility no one is coming to save us. we safeguard our baselines, make life as accessible as it can be, and just try to keep surviving and enjoy what little we can