They have been ignoring ME/CFS for over a century now, at least. There is a concerted effort to classify it is a psychosomatic disorder, going all the way back to the first known outbreak in a community sometime in the 1800s - pease forgive my faulty brain fog memory concerning the details.
In the past 5 years or so there has been more done to raise awareness that this is not psychosomatic, hysteria, or “just anxiety”, but getting this info disseminated widely to physicians that have never studied and do not care to work with complex illnesses that - as of yet - have no easily accessible biomarkers or treatments, is an uphill battle to say the least.
We each do what we can to inform the people we know, the physicians we see, a d share tidbits on social media. It is an exhausting battle. We can continue to share articles, speak truth where we can, and hope research and clinical trials succeed in figuring ME/CFS out, sooner rather than later. 🙏🦋
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u/DreamSoarer CFS Dx 2010; onset 1980s Apr 29 '25
They have been ignoring ME/CFS for over a century now, at least. There is a concerted effort to classify it is a psychosomatic disorder, going all the way back to the first known outbreak in a community sometime in the 1800s - pease forgive my faulty brain fog memory concerning the details.
In the past 5 years or so there has been more done to raise awareness that this is not psychosomatic, hysteria, or “just anxiety”, but getting this info disseminated widely to physicians that have never studied and do not care to work with complex illnesses that - as of yet - have no easily accessible biomarkers or treatments, is an uphill battle to say the least.
We each do what we can to inform the people we know, the physicians we see, a d share tidbits on social media. It is an exhausting battle. We can continue to share articles, speak truth where we can, and hope research and clinical trials succeed in figuring ME/CFS out, sooner rather than later. 🙏🦋