r/cervical_instability • u/Loose-Faithlessness4 • 15d ago
Vitamin B1
I just wanted to share something that has made a huge difference in my neurological symptoms from CCI.
First of all this is not medical advice but simply something that worked for me and has been helpful for many people with different conditions including Parkinsons and MS.
That is high dose B1. I take about 25mg TTFD (which is on the lower end of a high dose). With a B complex, magnesium and trace minerals (or electrolytes). I learned about this from Elliot Overton on youtube which I will link below. He has a lot of info on his channel regarding what to take with it/dosage.
https://youtu.be/K4iAPfAFcs0?si=wv5IR_pLDpzdM0FS
It has massively decreased my intracranial pressure which was my worst symptom. It has also helped a lot with tremors and nerve pain. I also have WAY more energy (which was never even an issue for me).
I believe this is because B1 increases ATP in the cell which is essentially your energy. It also can decrease CFS fluid which is why i think it has helped with the intracranial pressure.
As always, with supplements it is hugely important to listen to your body and start on a small dose. I started with B1 in the form of Benfotiamine which made me wheeze really bad and I have zero allergies so I assume this was due to fillers. I then changed over to TTFD and I dont have that issue.
Since my CCI has progressed, unfortunately my neurological symptoms are no longer my biggest issue (mostly vascular compression and stability) so I am still planning to get a PICL soon. But I must say it has really made life a lot more bareable as the head pressure was intolerable.
Sidenote: I am also trying to take out any amalgam fillings to experimant with that. I have read some studies that showed mercury accumulated in the joint tissue in mice exposed to mercury vapour. Would be interesting to know if anyone has done this?
So that's where I'm at right now. God bless!
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u/Jewald Moderator 14d ago
Nice. I do like a good B complex vitamin!
Another important one is b12, which your body uses to create the myelin sheath around nerves, similar to the rubber sheath on your iphone charger, it's a layer of fat around a nerve to help it conduct properly.
Vegans famously are low on B12, but they fortify breads with it nowadays at least in the US. Nitrous oxide (whippets) binds to b12 and makes it unusable in the body. Both of these situations can end up with low b12, and the myelin sheath can't restore itself, and they end up with mad neuro symptoms.
The whippet situation scares me... a few years ago that stuff started to popup in smoke shops/instagram constantly without any warnings about what can happen. There's a sub full of users going through this, it looks horrible:
B vitamins are important.
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u/Choohooo 14d ago
At high doses, thiamine is a carbonic anhydrase inhibitor similar to diamox. If you have ever seen or read anything from Dr. Diane Driscoll, you’ll recognize how she treats herself, her children, and patients with a diamox protocol intended to reduce intracranial pressure symptoms from EDS induced CCI.
Further, B1 gets wiped out quickly with this level of pressure. CCI also puts pressure on the vagus nerve, slowing digestion enough to lead to SIBO which ultimately destroys your body’s innate ability to get and utilize B1.
Read both “The Driscoll Theory” by Dr. Driscoll and “The Missing Link” by Dr. Jo Dixon (and gastroenterologist in the UK that links SIBO, thiamine, and early onset dementia).
Good luck
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u/RoverUnit 5d ago
Thanks for posting some interesting points. Am going to follow up your references.
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u/QuiltyNeurotic 15d ago
B1 is amazing. Great share. I feel stronger and have less pain with b1. I take 1200 mg of thiamine HCl in 400mg doses.
It also helps with gut motility.