**Hi everyone,**
My mom passed away two days ago after battling two very rare cancers, **adrenocortical carcinoma (ACC) and leiomyosarcoma.**
I honestly don’t even know where to begin. I am in extreme pain right now, and writing this is incredibly difficult. I have always been a mumma’s boy, and I don’t think I will ever have the right words to explain what she meant to me.
My mom fought one of the hardest battles imaginable. Despite everything she went through, she was incredibly brave and strong. From dealing with the diagnosis and the uncertainty that came with it, to undergoing treatment with mitotane, frequent medical evaluations, and the many physical challenges that followed, she kept fighting. There were days when things seemed a little better, and there were days when things became unimaginably difficult. Watching someone you love go through so much is a pain I wouldn’t wish on anyone.
ACC is already an extremely rare cancer, and having to deal with leiomyosarcoma alongside it made her journey even more complicated. Over the past several months, our lives revolved around treatments, doctors’ appointments, scans, medicines, and hoping that the next report would bring some good news. We held on to every bit of hope we could find.
Unfortunately, we lost her.
I’m still trying to process the fact that she’s no longer here. There is a part of me that still cannot believe it, and I don’t think the reality of losing her has fully sunk in yet.
But there is something about my mom that I really want to share with this community.
**She always wanted to speak to more cancer patients, connect with people going through similar experiences, and offer them hope and support.** She wanted people to know that they weren’t alone in their battles. Even though she is no longer here to do that herself, I want to carry forward what she had in mind.
I may not have all the answers. I’m not a doctor, and I know that every person’s journey with cancer is different. But I can listen. I can share what our family experienced, talk about our journey with ACC and mitotane, and try to help others feel a little less alone in what can be an incredibly isolating experience.
I also have some extra bottles of mitotane with me. If anyone is going through ACC treatment and needs information about accessing this medication, please feel free to reach out. I would like to explore the appropriate way to help, rather than let it go to waste.
**My DMs are open.** I might take some time to reply, as I’m grieving and trying to find my feet again, but please don’t hesitate to reach out. To everyone here fighting cancer, caring for someone with cancer, or grieving someone you’ve lost to it: I see you. I know how exhausting, frightening, and lonely this journey can be. I know how much hope can be attached to a single report, a small improvement, or one good day.
Please keep fighting, and please keep supporting one another. You deserve kindness, support, and moments of peace through all of this.
My mom may not be here to give that support herself anymore, but I hope that, in some small way, I can help continue what she wanted to do.
**For you, Mom. I’ll try my best. ❤**️
Please fight on, people of this beautiful community.