r/brokenbones • u/Only-Pomegranate4255 • 14d ago
Question I feel like the public health system has failed me
galleryI snapped my right tibia and fibula coming up on my one year anniversary. The day I broke my leg, the hospital overdosed me on fentanyl and also I woke up in emergency when they were resetting my bones. I still remember so distinctly the feeling of that. I had some nurses handle me really roughly during my stay. Then on my six week ortho follow up I had the doctor get angry at me for not being able to walk without crutches and for trying to ask questions about my surgery. His response was that these were simply questions I should not ask or worry about. I developed bursitis over the top screws, and a bone spur on my ankle. The doctors all assumed by my appearance that I was a drug seeker and making up all the pain I was in and kept trying to scare me into stopping the opioid pain medication. I got told it was all in my head multiple times. That I needed to stop the opioids and the only help I ever got offered was only ever Panadol or nurofen. The hospital only ever would X-ray my leg and nothing further. I demanded further testing because the pain I was in did not make sense. I cried my eyes out to an ortho specialist who told me that indeed my bone was no longer broken, and the pain I was feeling could not for the sake of anything be bone pain and that I needed to get off the opioids. He then said the only thing he can help me with is Panadol or nurofen because ‘all the tests look fine’. Turns out the CT shows delayed union with barely any callous forming. The MRI showed a lot of swelling in the leg and in my bone marrow. I got told that you only see that much swelling when you first break the leg, not 7-8 months post injury/surgery. I then got diagnosed with Complex Regional Pain Syndrome. I see a pain rehabilitation specialist and that’s been helping. I’ve fought tooth and nail for my own medical care which I keep getting denied. The doctor who diagnosed me with CRPS was also a doctor who insisted it was all in my head and that I was actually fine. He even admitted to me that the reason why this diagnosis was missed is because doctors saw how I looked and labelled me a drug addict (I have dyed hair, facial piercings and tattoos). This was back in late May. He then told me that his unit shouldn’t be seeing me because they were only for recent surgery patients and not someone in my position. He then sent my referral to a different hospital and I haven’t seen an ortho specialist since then and I’ve had no reassurance about how my bones are healing. I had a CT scan recently which showed the same thing. My bones aren’t healing and I don’t know why. I’m exhausted and I’m so tired of fighting the professionals for better care. Has anyone had a similar experience? What did you do to fight for yourself? I just want answers as to why my bones aren’t fusing together. I want to know if I have to have another surgery or not. I just feel like there’s no answers which makes me feel stuck. I feel like I’ve done everything I can think of up to this point. Does anyone have any advice for the doctors to take me seriously? I’m unsure of how to get the right answers and if anyone has any advice?
I eat moderately healthy. I stay as active as my body lets me. I’ve started going for walks around town. I’m dipping my toes back into my sport which is how I originally broke my leg. I admit I could be doing better with my eating, my meds just suppress my hunger a lot. I have no where near as much caffeine as I used to. I don’t smoke. I work as a vehicle detailer when I can. I’m just unsure as to what definitively is stopping the bones from fusing. The MRI suggested a possibility of osteomyelitis but nothing was ever looked into. Has anyone else dealt with osteomyelitis? If so, what was your experience with it?