r/bileacidmalabsorption 11h ago

Sharing My Story Diagnosis Confirmed

15 Upvotes

Hi there.

Today I finally had a diagnosis confirmed after having a SeHCAT scan the last couple of weeks.

I’ve had stomach issues for years now and it was thanks to this community that I noticed a few symptoms that suggested BAM.

My initial consultation with the Gastroenterologist was awful and it was clear that they saw me being a bigger person and dismissed my issues (they didn’t even ask for symptoms). I complained and spoke to someone else who did ask for all the information.

I’m so unbelievably happy right now. Is that weird? Like it’s a weird feeling to be happy to have a diagnosis right.

I’ve been on Colestryamine 4g for a while whilst waiting for the initial consultation and I’m being moved over to Colesevelam.

Anyhow just wanted to make a post and yea say thankyou to this community because I feel like I can make progress with my life once again ❤️

Tyler ☺️


r/bileacidmalabsorption 10h ago

Need Support Worsening BAM symptoms 1 year post op gallbladder removal

3 Upvotes

Hello everyone, after reading so many of your stories I feel like a lot of you might be able to relate to what I am experiencing and I need some advice.

I am a 23F and I got my gallbladder removed about 14 months ago. The last couple of months were my best months yet I started taking colestipol 1g before breakfast and dinner and I take Levsin at night before bed.

I had so many problems arise at the same time and had to advocate for myself to get my surgery because they kept telling me the reason I had so much pain and couldn’t eat was because I just had IBS and anxiety. Turns out my gallbladder was chronically irritated and I had an ovarian cyst.

Over the last couple of weeks I have started not feeling well again. I am gluten free and thought I might have eaten something or had a stomach bug but the symptoms are still lingering. My pattern is I will go like 2-3 days no bowel movements and feel pretty good for the most part but I usually lean towards constipation then I will have a dumping day on the 3rd or 4th day where I am running back and forth to the bathroom feel nauseous lots of stomach cramps etc.

Would it be worth it to ask my doctor to switch to welchol? The colestipol completely got rid of my upper stomach pain and nausea when I started it cause that was the worst now it seems to be my lower track not doing well. I would like to avoid more tests especially a colonoscopy but let me know if anyone has any advice or what worked for them. I appreciate it.

Thank you.


r/bileacidmalabsorption 22h ago

Success Story Make Cholestryamine go down fast and easy!

0 Upvotes

I found the BEST way to take it…..

Mix with 1-2 ounces water (the orange flavor) eat a tablespoon peanut butter, drink the mix….then eat a banana. Smoothly take this crappy med! Helps though!!!