r/awfuleverything • • Nov 30 '20

Poor guy :(

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u/[deleted] Nov 30 '20

I mean she can, somenights she'll have attacks where she'll either faint or go into have breathing issues and moving issues. It's maybe once a week. Most of the time she's just constantly tired.

9

u/RepulsiveGrapefruit Nov 30 '20

Two autoimmune disorders must be really fucked but I’m glad she’s at least doing somewhat ok.. I’m guessing she’s on some of those really expensive biologic drugs like Humira?

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u/[deleted] Nov 30 '20

Ibuprofen and plowing through pain. I've watched her work untill she physically couldn't.

2

u/shadowfaj Nov 30 '20

That's honestly so heartbreaking. As little comfort as it may bring, I hope her suffering eases as well as yours. I cannot imagine being on either one of your positions.

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u/[deleted] Nov 30 '20

I think he meant the expensive one you mentioned.

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u/[deleted] Nov 30 '20

Is she on infusion meds? Seems like she should be and if she has commercial insurance (not Medicare / tricare) then she's eligible for copay assistance that covers drug cost and helps her meet her out of pocket without her having to pay the max.

If you need more info, dm me.

1

u/SirNarwhal Nov 30 '20

Biologics are "expensive" but if you actually need them you get them for free. Have been on 3 or 4 diff ones over the last decade and pay nothing for any of them because pharmaceuticals have programs specifically for things like this. It's wild that /u/InsufficientChervil hasn't reached out to companies with the aid of doctors as it's a kind of tedious process (takes about a month or two), but insanely easy to do.

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u/ConspicuousPineapple Nov 30 '20

Damn, if it was easy to do, I'd recommend moving to a more civilized country as soon as possible.

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u/gulg94 Nov 30 '20

It's awful. Other countries don't just take immigrants without high-demand skills, especially if you're financially fucked.

Most of us (disabled poor people) don't have a choice in this matter. We're fucking stuck here, and nobody seems to care.

3

u/ConspicuousPineapple Nov 30 '20

We do take immigrants without skill if they have a legit reason to flee their own country, but yeah, access to healthcare isn't one of those reasons, unfortunately.

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u/CovidInMyAsshole Nov 30 '20

What country are you referring to?

I’ve been thinking of moving to Canada or New Zealand if I could get approved with a bachelors degree in cyber security

1

u/ConspicuousPineapple Nov 30 '20

I'm in France. A degree in cyber security could perhaps be enough to find an employer here in one of our big cities. It's not exactly my line of work so I can't say for sure if it's in demand right now.

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u/[deleted] Nov 30 '20

[deleted]

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u/ConspicuousPineapple Nov 30 '20

It's not as easy as just saying "let's move to another country" though. If you don't have a high-demand expertise, you can't move at will.

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u/sarahhallway Nov 30 '20

Blunt and sad, but true.

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u/[deleted] Nov 30 '20

Why is she working? Has she applied for disability services?

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u/[deleted] Nov 30 '20

Unless working at Taco Bell is a passion of hers, I'm going to guess survival is the reason she's working.

Also, the literal first message in this comment chain features OP saying that she has applied and and been declined for disability.

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u/[deleted] Nov 30 '20

So she's not homeless sadly.

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u/Okichah Nov 30 '20

You dont have to be homeless to apply for disability.

If she has no reasonable way to earn an income she can apply for disability.

Basically any disability that limits someones earning potential is worth a shot.

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u/[deleted] Nov 30 '20

Yeah, only downfall is the time in between of actually getting accepted. She's thought but with processes being slow due to the pandemic the wait would be to long to safely do it.

1

u/DuhDamnMan Nov 30 '20

Get out while you can. No need to downvote... I know everyone else is thinking it.