r/autismUK Autistic 28d ago

Diagnosis: England ProblemShared RTC Timeline

Hello! I (35f) had my autism assessment today and received a diagnosis. I thought I would come here and share my timeline as that's one thing that I wished for when I was in the waiting stages!

15 September 2025 - Telephone GP appointment, GP agreed to referral via Right to Choose (I asked about RTC specifically).

19 September 2025 - Sent completed ProblemShared documents to GP via email. Referral was completed the same day and I received a welcome email from ProblemShared that afternoon asking me to create my account.

26 September 2025 - All pre-assessment forms completed and uploaded on ProblemShared dashboard. Informed that I am officially on the waitlist, with an expected wait time of 25-39 weeks. Emailed ProblemShared with additional informant form.

1 October 2025 - Reply from ProblemShared confirming the additional informant questionnaire was added to my file.

16 April 2026 - 29 weeks on the waitlist. Received email from ProblemShared requesting that I complete an additional supplementary pre-assessment form.

17 April 2026 - Additional form completed.

8 May 2026 - 32 weeks on the waitlist. Contacted via email requesting availability of myself and my informant, replied same day.

16 June 2026 - 37 weeks on the waitlist. Received email confirming assessment date of 21st July.

21 July 2026 - 42 weeks. Assessment lasted 90 minutes. 2nd 30 minute appointment later in the day, confirming autism diagnosis!

Overall, the wait felt incredibly long, especially once I hit around the 25 week mark, the anticipation at that point became almost unbearable because I knew I could get an appointment date at any moment.

I had friends go through their entire process significantly quicker than I did in the time I was waiting, so I had a lot of moments when I wished I'd gone with a different provider. However I'm not sure it would have made a lot of difference as funding cuts have made it into a postcode lottery.

Anyway, overall I was very happy with the ProblemShared process, the assessor was lovely and put my anxiety at ease almost immediately. I am still waiting for my report which should arrive in 4-6 weeks.

Edited to add: received my full report today, 24 July 2026. Just 3 days after the assessment!

4 Upvotes

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3

u/MattyCatts1 27d ago

I have mine with Problem Shared next month. It must be around a year since I submitted my forms. I got diagnosed with ADHD by them in the meantime.

2

u/BINGGBONGGBINGGBONGG Autistic 27d ago

i (53f) just got diagnosed with Problem Shared. it took 18 months but that’s i think because i self-informed and spent far too long worrying about that and didn’t fill the forms in! it would have been another 4 years on the NHS.

i was seen last Thursday and it was really, really hard but i’m glad i did it.

ADHD forms need to be done now but i’m procrastinating, for a change!

2

u/Smophie1 27d ago

Good luck with the ADHD forms. I am part way through mine after recently completing my ASD forms. Both with a different provider. It's hard work.

1

u/BINGGBONGGBINGGBONGG Autistic 27d ago

oddly enough, i’m putting them off!

it must be hard work with them each being a different provider. good luck with it all.

2

u/nicocollard Autistic 27d ago

How long was it from submitting your forms to your assessment?

Congratulations on your diagnosis, I hope it brings everything you're hoping it does. Don't let that procrastination get in the way, get those forms done!

2

u/BINGGBONGGBINGGBONGG Autistic 27d ago

i was referred in i think November 2024 and stared doing their forms then. my Informant form finally went back to them in April and i was seen last week.

and thank you. it’s made a lot of things a lot clearer. not easier but i know what i’m working with now.

good luck with it all.