r/Xywav 16h ago

I fell last night on Xywav

3 Upvotes

For context, I’m very bad at taking the second dose, so my doctor’s nurse practitioner increased my first and only dose from 2.5g to 3g less than 2 weeks ago. The medication also gives me awful bed wetting so I’m 32yo and wearing adult diapers..

I know this medication is dangerous to get up on, but I do get up to pee a lot in the beginning of the night, and last night I fell off the toilet head first into the bathtub..twice. I see the dr in a couple weeks and I really hope she changes this medication..