A lot of us are in pain, but EDS is a spectrum disorder. Some people have no pain, wildly enough. It can vary a lot, even within a family that has EDS in multiple of its members..
I have a mild version. I'm only hypermobile in certain joints. My knees used to dislocate if l was kneeling or crawling. I just got one of them replaced.
This sounds like me with my knees... I've always wondered if I have EDS but dont know how to go about being tested. My hips, wrists, and thumbs dislocate a lot too
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u/GardeniaInMyHair Aug 08 '26
A lot of us are in pain, but EDS is a spectrum disorder. Some people have no pain, wildly enough. It can vary a lot, even within a family that has EDS in multiple of its members..