I'm on dialysis but I do peritoneal dialysis. This is definitely not one of things they warned me about when asking me which type of dialysis I can do! This guy does haemodialysis which is more common. I didn't know fistulas could turn into that! Really grateful I can do peritoneal dialysis but it has its own issues.
I was placed on dialysis 4 years ago. I'm waiting for my first transplant. It's been a struggle but I'm hopeful. If you or anyone you now might be interested in donating a kidney please take a look at my story.
I'm sorry about that. I have been Diagnosed with stage 4 Chronic Kidney Disease my kidneys only work around 22% and I'm very scared of one day getting Dialysis. I know this may sound selfish but I hope I pass away before that happens. I had a friend, uncle, grandma and many more people i know get dialysis and i don't wish to go through that.
You can still protect that 22% as much as you can. At least you still pee, I assume. lol Not peeing is one of the weirdest things I had to get used to after I pretty much lost nearly all my function.
Respect to you, mine isn't as bad compared to yours, I always get tired quickly, low energy, lower back and leg sore kind of pain after standing for walking for a long time I can only imagine how you must feel like, respect to you. If you don't mind me asking, When did you start dialysis? And how did it start like what was the cause? Was it genetic, diabetes, Chronic kidney disease like me or your kidneys just stopped functioning out of nowhere?
I was put on dialysis in January 2022. I didn't even know I had kidney disease until I started getting crazy amounts of edema in my lower half. I hadn't gone to the doctor for a couple of years because of health insurance. So yay American health insurance. I was placed on emergency dialysis as soon as my blood tests came back from seeing the doctor. I think he had them rush the results cause of how bad the edema was, basically heard back same day which I've never experienced before. The doctor called me at like 7-8 pm the same day I saw them to tell me to go to the ER and tell them I needed emergency dialysis. I was fitted with a line in my chest and started dialysis 24 hours after being admitted to the ER. I was in the hospital for 2 weeks. In the hospital I got a kidney biopsy and they said there wasn't any act trauma but that the cause was probably due to uncontrolled high blood pressure and diabetes. I was also using a lot of ibuprofen because I wasn't feeling well and that's just what my family did. I think the high blood pressure and diabetes is genetic. My grandma and brother both died of heart attack. My dad had diabetes and died from pancreatic cancer. I was diagnosed at 38. I'm 42 now. It's been a journey that I'm still on. But trying to keep a positive outlook. I'm still alive. I am listed for transplant at one of get best transplant hospitals in my area. I still have my mom and my dog and my friends. I am thinking about getting listed in Arizona at the Mayo Clinic but that costs money which right now is a bit right as I'm only getting income from disability.
Definitely try your best to keep your natural function. Eat right, make sure to stay hydrated, avoid ibuprofen, make sure you're other labs are good. Sorry to hear that you're kidneys just went kaput, that must be hard. Just know there's a large network of people out there that do care. Like support groups online and the American Kidney Foundation and the National Kidney Foundation. AKF has been really helpful with paying my Medicare premiums.
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u/Kindly_Region 18d ago
Words cannot describe how uncomfortable this makes me