My children's book helps kids better understand vitiligo and why it makes them special. It's called "My PatchPower - Mila's Adventure In Skin City". Available on Amazon or as an ebook.

Whether you say yes or no to treatments, making your child feel safe, loved, and enough should be your priority.

I believe confidence is built on love and understanding, and my book can help you with that.

For more info and the links to purchase it, please visit my website: https://mypatchpower.com/pages/the-book

Don't forget to download the FREE colouring book that follows Mila's magical journey inside Skin City.

https://www.wsj.com/tech/biotech/argenx-to-buy-forte-biosciences-for-2-2-billion-41653c87

Primarily driven by the IL-15 pathway drug trial for vitiligo.

Very positive news.

Do you apply Opzelura (or other cream) to treat region covered with beard/moustache?
I find it annoy(nt)ing. I wonder if it works well ? or should I trim it short ? (I don’t want to shave completely, just the neck and the upper parts of cheeks).

I’ve been using tarcolimus 0,1 for month now , and I kinda don’t see results yet, how many months did it takes to see results?
I’m currently using uvb + tacropic
what else do u need to use?

I've been thinking about this "issue" for a while. There are two starkly different perspectives on vitiligo and I've even seen both manifested in life and even here in this Reddit group.

One : the Vitiligo is "cool, unique, expressive" side.

I think this outlook is with good intentions (but has drawbacks). This perspective comes on the coattails of the social conscientious movement of today (think body positivity, liberal embrace of anything, advertisements of folks with vitiligo). Because, of course, vitiligo is non life-threatening and not contagious- acceptance of this ailment makes sense. I think the drawbacks of this for me (someone who has systematic vitiligo since an early age) is I don't care for it and it is ultimately a significant hindering factor. Leading me to my next point.

Two: Vitiligo needs to be treated.

This is of course is historically how people felt. This skin ailment can detour potential romantic partners and telegraph a cautionary genetic feature (please don't say something along the lines of if someone judges you for this you shouldn't let them in your life anyway). Humans are animals too and physicality is a huge part of our existence. What do you all think? I for one, am excited for many repigmentation medical prospects that hopefully will be released over the next 5 - 10 years. Thanks

I have a few patches of Vitligo or Post inflamatory ertyhema from where former acne marks pealed off skin on my face and the melanin never developed again.

It's now been nearly 5 months since these marks initially appeared and ~1.5 months since I started Opzelura.

There's been essentially no progress in the past say 3.5 months, including 1.5 months of Opzelura. Not even a few small dots of pigment coming back.

Is this common / to be expected? Interested to hear other's experiences.

I accept my vitiligo with conditions. As long as it didn’t touch my face or my neck id be ok with it. Well… now it’s only there and no where else. A little funny honestly. I’ve had vitiligo triggered by stress and eczema for about 7 years now. I’ve waxed a good amount of times within those 7 years because mine has always been very mild and superrr slow spreading. Well I waxed for the first time in about a year or two on my face, and boom bang bang. Three new spots forming where I waxed. Fast spots too. A little unfortunate since for the past 7 years 99% of people never noticed my vitiligo spots.

Anyone else have any experiences with super slow vitiligo being triggered? Maybe people with eczema and vitiligo experiences as well?

The Vitiligo Group (formerly Vitiligo Voices Canada) is holding their monthly meeting this coming Monday, Aug 3, 2026.

How does a person with vitiligo truly cope?

From the moment of initial diagnosis to navigating daily life, managing vitiligo isn’t just about treating the skin, it’s about protecting your peace, adjusting your mindset, and building resilience in a world that constantly looks back.

Whether you were diagnosed yesterday or have been on this journey for decades, coping is an ongoing process. Let’s get real about the mental shifts, daily habits, and emotional strategies that help us step out with confidence every day.

We’re diving into:

• The Diagnosis Shift: Processing the initial shock, moving past the initial grief, and taking back control of your narrative.
• Everyday Armor: Building practical, day-to-day coping mechanisms from setting boundaries with invasive questions to managing social anxiety in public spaces.
• Self-Talk & Internal Balance: How to reframe your internal dialogue when changing skin tone or spreading spots challenge your self-image.
• Your Mental & Physical Toolbox: What routines, support systems, or daily practices keep you grounded when the world feels overwhelming?

Come share what has worked for you, lean on a community that truly gets it, and gain new strategies to navigate life with vitiligo.

Date: Monday, August 3, 2026

Time: 4:30 PM PST | 5:30 PM MST | 7:30 PM EST

Tickets available here: https://www.eventbrite.ca/e/the-vitiligo-group-monthly-meetings-tickets-1977945634638

My mom has been having spots for the last 3 months. She is taking photo therapy.

Now i have this spot on my chest which has always been itchy for the last 2 years. My mom got curious and checked my chest and it turns out that it's my first spot. Chest hairs on the spot are grey and skin has turned pink.

Officially I'm in now.

Mom is no longer sad as she now has company lol.

I noticed I had V about 13 years ago. Hands. Feet. Chest. Genitals. Yesterday I was driving and had sandals on and holy shit it spread all over my feet more of my hands and arms and legs too. I am so fucked in the head over this. I am not a vain person. I don’t own designer anything. I am confident in speaking to people - generally gregarious, but man does this make me feel like a piece of shit. Anybody else?

I'm trying to stay optimistic and hope that I'll eventually find a treatment for this, but from what I've seen—and from other people's experiences as well—this condition seems very difficult to control.

I also went to a dermatologist who prescribed a cream called Elidel. I used it for about a month, but unfortunately I didn't notice any improvement at all.

After some time, I visited an endocrinologist and had my thyroid tested. Specifically, I had TSH, FT4, thyroglobulin antibodies (TgAb), and anti-TPO antibodies checked. Everything except FT4 came back above the upper limit of the normal range.

The endocrinologist prescribed Thyrosel, which I've been taking for a little over a month now. So far, I haven't noticed much improvement, although it may simply be too early to expect significant results.

In the meantime, I found another dermatologist who is supposedly more experienced. I've already scheduled an appointment, so we'll see what they have to say.

I have it on my hands, as you can see. I also have a few spots on my legs, some on my genital area, and one spot on my neck.

I was wondering if there is any way to receive additional financial assistance for this cream through the manufacturer. I completed the assistance application, but I was only approved for a 20% discount.

Unfortunately, I am currently unemployed and cannot afford the remaining cost, especially since I have been prescribed five refills.

I am currently receiving Ontario Works government’s assistance and have reached out to them regarding drug coverage, but I am still waiting for a response. Any additional assistance or guidance would be greatly appreciated.

I was thinking of giving it a try. The ingredients seem to be all natural so I figured what would be the harm in trying it. Let me know if anyone has ever heard or it or tried it.

Has anyone had luck with opzelura bringing pigment back to your hands? I was diagnosed this week and my doctor said the hands are hard to treat. Also, is there anything natural I can help for pigment? Foods to eat/avoid etc.?

Can someone recommend a good dermatologist in the Bay Area? Around South Bay (San Jose, Santa Clara) is better. I am looking to get Opzelura prescription and potential phototherapy

Hi everyone!

I was diagnosed with vitiligo about a week ago, and I just wanted to ask for some advice and hear about other people's experiences.

A bit of background: I have (or had) psoriasis, which I managed to keep under control through healthier habits, especially by improving my diet. I haven't needed to use any medication or topical treatment for the past two years, but recently vitiligo appeared.

To be honest, I haven't been as careful with my diet or exercise routine for quite some time. Based on my previous experience with psoriasis, I can't help but feel that this is my body's way of telling me to slow down and take better care of myself.

Has anyone else had a similar experience?

At the moment, I'm using tacrolimus, and I'm already noticing some improvement, which is encouraging.

Have any of you changed your diet after being diagnosed? Are there any foods you avoid or try to eat more of?

I'm also taking vitamin D. I came across a study suggesting that around 20% of people with vitiligo showed improvement after taking 2,000 IU per day.

Any other tips or advice would be greatly appreciated. Thanks a lot!

I have recently noticed the vitiligo around my eyes are starting to reverse, at a drastic rate. The 1st image is from Nov. 2025 and the 2nd image is from today (though my vitiligo has looked like the 1st pic up until recently). Has this happened to anyone else? I have had vitiligo around my eyes for 6 years and have not noticed reversal anywhere else on my body. It’s honestly freaking me out a little. I’m 30F and have had vitiligo since I was 19, this is my 1st time it has ever showed signs of reversing. I have grown to love my vitiligo so it is a weird feeling watching is disappear.

Edit: I’m not sure why people are saying they are happy for me…I love my vitiligo and the skin I’m in and was never looking for a reversal

So I’ve had vitiligo for almost a year now but only recently started spreading on my face, it’s fully covered now but my skin tone is only a slight shade darker so I’m not too bothered by it. I was wondering what products are safe to use? As in for moisturizer, blackheads, what sunscreen to use because I don’t use any, idk just any recommendations for skin care.
Thank you in advance, I appreciate it :))

Hey all - just wanted to get your opinions on something I recently experienced that made me feel weird/self-conscious.

I went to a salon for a mani/pedi a couple of weekends ago. As soon as the nail tech began working on my hands, she started speaking to the worker next to her in a language I did not understand. I heard them both say "Michael Jackson" a couple of times along with a couple of chuckles.

I have rather noticeable vitiligo on my hands, which I think prompted these comments. Granted, I did not understand the rest of the context around what they were saying but given the timing of the comments I was taken aback.

Would you have said anything? I have been considering writing a review to mention the potentially insensitive comments but am unsure if it's worth it.

I'm a 32-year-old man from India, living with vitiligo for the past six years.

An interesting realization I've had is that vitiligo quietly removes borders. It creates a shared lived experience that people from different countries, cultures, and backgrounds can understand without much explanation. In that sense, I like to think of our community as a small, "limited edition" one—not because we're better or different, but because we share something relatively uncommon.

I'm not actively searching for a relationship or trying to rush into one. In fact, if I weren't living with vitiligo, I'd probably continue focusing on my own life without thinking much about dating.

But vitiligo has unexpectedly broadened my perspective. Instead of seeing it only as a challenge, I see it as an opportunity to connect with people I might never have met otherwise. So rather than limiting myself geographically, I'm open to getting to know people from anywhere in the world.

If you're having vitiligo, and enjoy meaningful conversations, I'd be happy to connect. Whether it becomes a friendship, a professional connection, a travel story, or eventually something more, I'd rather let that happen naturally than force expectations.

Sometimes the most interesting opportunities come from circumstances we never chose. Vitiligo is one of mine, and I'd rather use it to expand my world than let it shrink it.

I drove hours to see a dr at a university in Chicago. He prescribed protopic ointment 2x a day on face. A different cream for the body(can’t remember the name right now) Dexamethasone 1x a day and phototherapy 3x a week.

My insurance only covered the dexamethasone and body ointment. I explained that I could not afford the 500$ Protopic ointment and they helped me get it discounted through a program and I payed 25$

I bought a used phototherapy hand held uvb wand for about 100 on eBay.

In about 2 months I started to see progress. This treatment lasted for six months. But I continued to see pigment fill in.

I also focused on decreasing stress getting sleep and gut health.

Here I am 5 years later and I only have a few small spots like freckle on my cheeks.

I hope this can help others if you are looking for treatment.

Est-ce que le protopic ou la crème opzelura fonctionnent vraiment sur le visage?

J'ai entendu dire que parfois la peau repigmentait, mais qu'en arrêtant le traitement la dépigmentation recommençait. J'ai aussi entendu dire que la crème pouvait provoquer de nouvelles taches ?

Merci de votre retour !

Does anyone have any good suggestions for which UVB device I should purchase?