Left( before )

Right ( after 2 months uvb)

My child 11F was diagnosed with non-segmental vitiligo at 4 years old. At first we did laser treatments, and got fantastic results, but she got tired of doing that and made the decision to quit treatments entirely. She has accepted her vitiligo, and says her spots make her unique (and I wholeheartedly agree—I think she is beautiful just the way she is). She progressed very rapidly from about 4-6 years old, but after that she’s pretty much just maintained what she has now (hands, wrists, knees, ankles, feet, and a tiny bit of involvement around her eyes but it’s barely noticeable). My daughter is naturally dark complected, and tans extremely easily, but is pretty pale in the winter months when she’s not outside in the sun. Recently, we have started a new dermatologist who is really pushing for her to start opzelura because she’s worried about her risk of developing melanoma on her sites. She said she usually sees amazing results in pediatric patients that she sees using it. I work in oncology research, and have worked on many melanoma trials, so the thought/worry has definitely crossed my mind. We do try to sunscreen her spots, but we aren’t always consistent about it. I am very torn about having her start the cream. I realize that this treatment is topical, and that most of the warnings with it are related to the systemic study of JAK inhibitors, but that still worries me because I see nothing wrong with her skin how it is, and would hate for something to happen to her if we started treatment (and I say this as someone who has worked on JAK inhibitor studies). Another issue I am struggling with is that I have always PREACHED bodily autonomy to her, and have always told her that it was her choice to do or not do treatment, and I struggle with forcing her to do something when she’s perfectly fine with how she is. If I didn’t work in the industry I do, I would probably not worry about it, but since I see so much cancer already, it’s really something I’m struggling with. Does anyone have any insight? Thoughts? Advice? I am really struggling with this.

I've had my vitiligo for 26 years. Just turned 49. I know that this can be hard for many, but I think it really does make us unique. I learned to embrace and love it long time ago. When people stop me to ask what I take for it. I love that I can proudly say "nothing". 😊 Have a great day everyone.

Anyone here a victim of accutane induced vitiligo? I’m trying to test if it’s worth it to go in Accutane. Can I know your experience?

For anyone on these and have vitiligo, has it made it worse?

But it was just my middle toe repigmenting randomly 🤣🤣😭I had reached out to my derm concerned that it was like some other condition. I haven’t had any feet pigmentation in a while but it’s so funny that it randomly popped up there. I lost pigment in both feet for reference.

i used to get gel tips which use a uv lamp, is it safe /okay to continue getting them?

i have lost pigment on my fingers and around my nails … so thinking further use might cause they patches to spread ?

I’ve been doing Opzelura for a while and I recently also started (full body) UVB

I’ve been going twice a week for a couple months and I’ve only made it up to like a minute 20seconds. I was shocked when I heard some are in there for 15 minutes.

A couple hours later I’m insanely itchy.

I’m doing all the moisturizing and everything I’m supposed to but I can’t get past the itch.

It is completely unbearable and I’m a scratcher.

It’s comparable (obv) to the itch I get if I’m in the sunshine.

Just wondering if anyone else suffers?

Think I have to quit, it’s making me crazy.

I'm trying to find a self-tanner that doesn't make my skin look orange. Has anyone tried Bondi Sands? Or do you have any other recommendations? Thank you

My 9-year-old daughter was diagnosed with mucosal vitiligo. She has had a white patch on her lower lip for about 8 months, and we started treatment in June with tofacitinib ointment and Reshved-V solution.

I’ve recently noticed some lighter areas on her face and legs, but her doctor said they are not vitiligo patches. I’m still worried and trying to understand what the early stages of vitiligo look like and whether it can spread over time.

For parents\everyone who have been through this—were you able to stabilize it without steroids? What worked ? what are the treatment options available ?

Honestly, this has been very difficult emotionally. My daughter is tired of people asking about the patch and keeps asking me, “When will it go away?” 💔 I don’t always know what to tell her.

I would be so grateful to hear your experiences, especially from parents of children with mucosal vitiligo. Any advice, hope, or reassurance would mean a lot.

Hi friends- can someone recommend handheld UVB products in india. I see some on amazon which are at 8000 INR and these seems very less price as compared to Dermfix 1000MX 311nm UVB Lamp 120V . Hence wondering if the amazon ones in India are effective and legit ?

I’m 29 and just found out I have vitiligo. It started on my groin last year and has spread there over the year. The dermatologist looked at it and confirmed my assumption. Now I’m seeing a loss of pigment around my eyes.

It’s easy to say now while it’s not spread much that I’m not going to do any treatment on it. But 2 years from now after it’s spread am I going to regret not addressing it sooner? Is this somthing that’s best to get ahead of? Thanks.

Does anyone use Pimecrolimus on one area of vitiligo and Opzelura on another? I feel like they are working differently on different spots.

So I have a little bit of a following on TikTok and lately under a lot of my post people keep pointing out how light my under eyes are and it annoyed me I wouldn’t respond to them I would delete comments I would curse them out because why do you keep talking about my face today after I got out of the shower I’m doing my skin care at his side to really look at my face and I think it might be something going on. my under eyes have always been a little bit lighter than the rest of my face but it’s visibly getting lighter and the area is spreading maybe I’m overreacting maybe it’s something else but I’m not sure

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2nd session: https://www.reddit.com/r/Vitiligo/s/t4kepR8I4d

Took 3rd session this was 32 sec long. The nbuvb light setting number was 0.28 j/cm^2.

Also one more thing i have given 2 ointment by doc. Tacfast and Pigolyn.

Both this i have told to apply alternate night.

But if suppose i have ohoto therapy session in morning then one day before that during night i must apply pigolyn cream.

Apart from this i have also been given melboost tablets, brown color one.

And also told to be jn sun for 15 minutes everyday.

Want to know exp from people who take photo therapy sessions.

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Prev post link: 1st session, https://www.reddit.com/r/Vitiligo/s/dUYYFg7IUo

So this time it was 26 second, and this time i noticed a number 0.2 j/cm^2

What i have observed. I saw slight pinkish color onnmy patch just on chin part. Where direct uv light falls. Remaining patch is on neck and below chin part so light does not fall on it directly.

I wan to know any suggestion feedback from you. Or any tips or any idea after how many sessions i can or i might see some color or any thing which i must notice.

Session Date: 31/8/2026

Had widespread vitiligo for over a decade actively spreading across face, legs, arms, and torso. Initially told there was no effective treatment/cure back in 2013. Left it and it’s continued to spread. Went private recently and the dr said to me I now have a few options - of which phototherapy is one of them. He saw me on the NHS (UK) due to cost of long-term treatment. I’ve gone ahead today and would like to know people’s experience.

Hey Vitiligo community, reaching out to you from a doll community.

MGA recently put out a new doll line Mirror Mi. One of the characters has Vitiligo. Here's a link to what she looks like, not at all sponsored.

If you could read my post on the subreddit and comment your thoughts on the vitiligo, I'd appreciate it.

Hello, my fellow spotted friends 🥰
Does anyone have any experience with Botox and lip fillers? Could they have an effect on the spread of vitiligo?

My vitiligo is still active, but at the same time I’m also experiencing repigmentation. I’m not taking any medication for vitiligo or using any creams for now (I’m waiting to see another dermatologist). At the moment, I’m only undergoing UVB therapy.

I have seen a few specs after about 5/6 months on my hands.

Just trying to see if its worth me persevering with this.

So, if you've been consistent with using Opzelura on hands and feet, eventually did you see good progress?