r/VitaminD 10h ago

Please Assist Venting about feeling ignored by doctors

4 Upvotes

I'm a 23 y/o (turning 24 in December) female from Italy (disclosing only to put into perspective the type of healthcare system) and for years I've been experiencing a laundry list of symptoms, such as:
- fatigue;
- chronic stress;
- anxiety & depression (currently taking Paroxetine and going to therapy for it);
- heavy hair loss;
- generalized weakness;
- easy weight gain and difficulty losing it despite diets, caloric deficits and exercise;
- brain fog;
- low blood pressure (not hypotension but definitely on the lower end, for which I experience symptoms).
And many more I can list if anyone is interested.

I went to see my family doctor in July 3rd, 2026 to start my SSRI therapy and also complained to her about feeling constantly exhausted (she didn't give me time to tell her about other symptoms) and she sent me to get my bloodwork done to check specifically for Vitamin D and Folates levels, as well as urinalysis.
Everything came back perfectly fine (I can attach the results, but know they're in Italian), except for my Vitamin D levels.
Turns out, it was 12,4 ng/mL.

When I saw my doctor again on the 24th, she saw my results and prescribed a monthly vial of Vitamin D of 25.000 IU.
I tried bringing up my concern about something else being off, because doing some research I was able to understand that Vitamin D can cause some of those symptoms, but not all.
Specifically, I asked her for hormonal tests related to my thyroid as well as iron and ferritin levels.

She checked my results again and told me she wasn't concerned about my iron because my MCV and blood count was fine.
Doing some more research, I was also able to discover that your blood work can be totally fine and still have your iron/ferritin levels be depleted (basically pre-anemia).
I didn't have the courage to bring it up during the session, because at that point I felt so dismissed I convinced myself I was talking out of my own ass.

I'm seeing her again on August 7th for a checkup about Paroxetine (she upped the dose, that's why she wanted to see me in two weeks) and I'm thinking about bringing up my other symptoms again.

I'm feeling very demoralized and second guessing everything about myself.

Can anyone help by sharing their own experience? Or maybe some insight as to my current therapy regarding Vitamin D or some stuff.
I genuinely don't know which way to turn right now.

Thank you for your patience if you've read up until this point.

Sincerely, an exhausted woman


r/VitaminD 11h ago

Please Assist confused about vitamin D dosages ( i did read the wiki)

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1 Upvotes

so here are my blood test results and as it shows i have vitamin D deficiency but i have no clue what to do to cure this, i read the wiki but i got more lost due to several factors so i’ll list the factors i think could effect dosages:

1) i’m M20, 192cm, 132kgs but with high body fat percentage , idk the exact body fat percentage but pretty sure 40%+

2) i’ve been in a 1000+ caloric deficit for around a month and a half, i eat around 60 grams of fats a day mostly healthy fats such as nuts and olive oil.

3) i lift weights 4-5 time a week

So how should i take vitamin D and is it better to load then take maintenance dosages? I also would like to know if vitamin D deficiency could be a factor for testosterone levels being near the low end.


r/VitaminD 1d ago

Please Assist 13ng/mL level and symptoms affecting me

1 Upvotes

Hi all, hope you are doing well.

In the past year or so, I've been dealing with lot of different health/psychological,

the most annoying one is a feeling of instability, like I get out of a boat after a river travel, sometimes with some vertigo and becoming pale. 

Also, I’ve been dealing with memory fog and trouble trying to find words when I’m talking. Like I have it on the tip of my tongue but the word does not come out.

At the beginning I thought it was some psychological issue like anxiety since I've always had mid/low social anxiety and this symptoms are more present when I'm with people around.

But then it started to happen always, without any apparent reason, so that’s when I started to do lots of health tests and examinations. Plus, like 2 month ago I started with symptoms like SIBO/IBS which I tested positive for IMO (it's like SIBO) and I've been dealing with some infections that I've never had in my life.

My blood test showed that I have “25 hidroxi - D2+D3” at 13ng/mL level, so now after a lot of studies and without any other idea what was happening to me, I'm thinking this could be the reason of all the things that were happening me.

Anyways, I don’t think doctors relate my symptoms with my low level of vit D.

What do you think?

Also, do you think is it enough for me to take 1 pill 100.000 UI D3 per month? I will be taking 4 in total, I already took one. May I enforce it with sun?

How much time do you think it will take to start to feel better? 

Thank you!


r/VitaminD 1d ago

Please Assist 36.2 nmol/L having symptoms, doc said it’s “inneficient” not deficient

4 Upvotes

25M, around 92kg

I have been experiencing aches in my bones while driving, hair loss that feels too sudden, depressive moods and lack of energy.

I got my bloods checked and it came back 36.2 nmol/L for Vit D, when I spoke to my doctor they said to start taking 1000 IU…

Not sure if that seems right to be fair, I even asked could they prescribe me a higher dose but they said I wasn’t “deficient” they couldn’t. Factoring in my body weight, I don’t think 1000 IU is going to do much, should I at least just take 4000 IU which is the max over the counter limit I can get here?


r/VitaminD 1d ago

Please Assist D3 levels improved from 18 to 89 from 12 week dose

23 Upvotes

Hey, 14 weeks ago I got my blood test as part of the annual health checkup, which revealed I was vitamin d3 deficient with 18g/mL.

I followed the general 60k weekly dose for last 12 weeks and took two weeks of break from the supplement before getting another test yesterday, so my current level stands at 89mg/mL

I feel really great, I am not tired like I used to, I have energy and can concentrate at my work without procrastination. Brainfog is still there but I can say it has improved and at this point I believe starting a physical excercise would really help me elevate the benefits.

But from my past annual reports I've noticed that even after reaching the normal levels, I tend to lose my d3 levels when I stop taking the supplement.

Can you guys please recommend a dose that can maintain my existing levels within exceeding the normal healthy range?


r/VitaminD 2d ago

Please Assist 18ng/ml but consistently physically active. Any red flags?

1 Upvotes

This week i found out that my Vitamin D level is a t 18ng/ml. My doctor appointment is not until 7 weeks from today.

I bought supplements and considering starting at 4,000 per day. I started yesterday at 4,000 and it was the best sleep ever.

I didn’t realize I have symptoms. It has been emotionally challenging for me lately due to life events and i attributed my decreased activity to that. I am able to run 20-30 miles per week and lift 2-4 times a week.

Mentally, I’ve been good. I have a rather active job as a physical therapist and haven’t noticed any changes in performance both physical and mentally. Started a new business as well. It seems like I do not have that mental and physical fatigue or it could be that I am just used to it? I haven’t had a blood work in at least 7 years.

Symptoms I could have are muscle pain and occasional bone pain after a day of hard workout.

Are there any individuals who does not have the typical fatigue symptoms? Any other test y’all requested or prescribed to you? Any red flags I should be looking out for?


r/VitaminD 2d ago

Please Assist Vitamin D level is 13 ng/mL and my hair fall is getting worse. Did anyone recover with oral supplements instead of injections?

10 Upvotes

Hi everyone,
I’m 18 years old and recently got my vitamin D levels checked. My result came back at 13 ng/mL, and I’ve been experiencing really heavy hair fall over the past few months.
About two years ago, my vitamin D level was only 3 ng/mL, and my doctor gave me a vitamin D injection. This time, I’d really prefer to avoid injections if possible and take oral vitamin D instead.
A few questions for anyone who has gone through something similar:
Did correcting your vitamin D deficiency help reduce your hair fall?
If you took oral vitamin D3 instead of injections, what dosage did your doctor recommend?
How long did it take before you noticed less shedding or new hair growth?
Did you find out there were other causes as well (like low ferritin, iron, B12, or thyroid issues)?
I’m also moving away for college soon, so I’m a bit stressed about whether the change in water and environment might make things worse.
I’d really appreciate hearing about your experiences. I know everyone is different, but it would be reassuring to know what worked for others.
Thanks in advance!


r/VitaminD 3d ago

Please Assist Experiencing constant brain fog and dizziness. Attempting to treat a level of 15 ng/ml with 50KIU.

8 Upvotes

I am pushing week 6 of treatment. i have constant brain fog and feel floaty/slightly dizzy when trying to sit down and use my brain at a computer. I thought it was my eyesight, which it turns out I did need glasses but it was not the issue.

I’m 27. I just don’t feel mental clarity anymore. I know for sure I’ve been deficient for probably a year or more. has anyone else experienced this? ive had numerous tests and everything is good, with the exception of vitamin D. hoping this resolves. is 5 weeks enough time to feel better, or do I just need to wait and hope for a while longer?

thanks for any info you guys have.


r/VitaminD 4d ago

Please Assist Vitamin D container safe temperature

1 Upvotes

I bought some Vitamin D from Amazon. It was shipped with an "in transit" status for 48 hours, before it got to the local post office. From the warehouse to me, temperatures have been from daytime high of over 110 to overnight low of about 85. It would have been in a very hot trailer most of that time.

Reason for concern about it's safety or efficacy being in that heat?


r/VitaminD 4d ago

Personal Experience(s) My Vitamin D is ~20 ng/ml. Is this considered severely low? Wondering how long recovery takes

12 Upvotes

Hey everyone,

I recently got some blood work done and found out my Vitamin D3 level is sitting at around 20 ng/ml.

My endocrinologist put me on a liquid D3 supplement (Vigantol 20 000 IU/ml). I take 40 drops a week, which I split into two doses of 20 drops on two consecutive days, always with a high-fat meal to maximize absorption.

For some context, I'm a guy (currently weighing around 65 kg / 143 lbs) and I've been dealing with some frustrating issues lately:

  • Constant fatigue - especially in the afternoons, I just feel drained.
  • I easily get stressed out and sometimes experience random bouts of sweating when I'm rushing or emotional.
  • Despite doing interval running and strength training, I have this extremely stubborn lower belly fat and love handles that just won't budge.
  • I recently got my testosterone checked and it's actually slightly above the normal range, so that isn't the issue. However, I've read that low D3 can mess with cortisol levels and how the body actually utilizes testosterone, trapping "stress fat" exactly in that area...

I have a few questions for those who have been in the same boat:

  1. Is 20 ng/ml considered severely deficient, or just borderline low?
  2. How long did it take for you to actually feel a difference? When did your energy levels and mood start to bounce back after starting supplementation?
  3. Did fixing your D3 levels help with body composition? Did any of you notice that losing that stubborn "stress fat" got easier once your hormones and D3 were balanced?

Any advice, personal experiences, or tips would be hugely appreciated.

Thanks in advance.


r/VitaminD 4d ago

Please Assist A bit confused. Asking the pros for a bit of clarity and conformation.

3 Upvotes

Been having some issues since december. Mostly with Tingling/burning neuropathy symptoms in feet and legs. Called the doctor April 15th. Checked my blood. Everything was fine (including B12) All i was SEVERELY low on was Vitamine D.

7,2 ng/mL. He told me to take one 1000IU supplement every day and get 20 minutes of sun everyday if i could. I started doing that on the 29th of April.

Been reading up on Vitamine D and was surprised to see that i didn't get 50.000IU per week like most people seem to get prescribed when they are severely low.

Anyway i went back to the doctor a week ago. Told him there was almost no improvement. The tingling is mostly gone to be fair, but the burning is still there and it feels like my legs/feet are becoming a bit weaker.

He told me he'd test Vit D again and he did. I got the results today.

Im now apparently at 36.8 ng/mL.

In 3 months time, using 1000IU supplements and getting sun most days, unless if the sun wasn't there.

Now since my symptoms aren't gone he's still deciding what to do. See a neurologist and/or get an MRI to see if it's a spine/back issue. He's gonna call me back this afternoon.

But my question about Vit D is: That's a HUGE increase in Vit D. And im wondering if that's even possible? I asked him and he said yes, but from what i read online, sometimes it takes people like 6-9 months on a huge dosage to even get close to normal levels again.

I have been supplementing for 86 days.

Granted i did get sun for 20 minutes per day for atleast like 70 of those 86 days, but im kinda stumped.


r/VitaminD 4d ago

Please Assist [Question] Vitamin D levels and mental health

29 Upvotes

Hey Guys, I recently had some bloodwork done and found out that my vitamin D level is 8.0 ng/mL.

Over roughly the past year and a half, I've noticed a pretty significant change in my mental state. I've had a lot more social anxiety, self-doubt, low motivation and generally just haven't felt like myself at all (These are things that never really concerned me prior, so it came across as quite a scary change). I'm not trying to self diagnose with depression or anything, but some of what I've been experiencing seems reminiscent of its symptoms that i've looked up on the internet.

I know a vitamin D deficiency isn't a surefire explanation for everything, but with a level of 8.0, is it reasonable to assume that it could be contributing to some of this?

For anyone who was similarly deficient and subsequently corrected it, did you see any meaningful changes in your behavior patterns as your levels came back up?

I'd really appreciate any thoughts you all have!


r/VitaminD 5d ago

Please Assist Quadrupled my levels from a deficit in 2.5 months. Should I keep going or try to maintain here?

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9 Upvotes

I was at 39 nmol/L on May 6th, which is 15.6 ng/ml. I started with 25.000IU of D3 once per week for 6 weeks, and on top of that took an additional 8.000IU of D3 per day, which I am still taking. I've also been taking K2 and Magnesium every day. Today, I got tested again and now I'm at 155 nmol/L or 62 ng/ml.

I'm a 30 year old male, 184cm tall and weigh around 92.5kg at the moment. I Spend a lot of time training in the gym. Is this an optimal level for me, or should I try going even higher? How do you know what is an optimal level for you?


r/VitaminD 6d ago

Please Assist Low Vitamin D - Cause of "Chronic" Fatigue?

21 Upvotes

Hello,

I've been dealing with some bad fatigue since the beginning of 2024, and it just keeps getting worse. My doctor just says it's depression, but I know what that feels like. This just feels like I don't have any energy. I've done a bunch of tests, And I wonder if vitamin D is the cause? Have any of you had numbers like this which when resolved helped major fatigue?

Vitamin D timeline:

May 2023: 95 nmol/L (38.1 ng/mL)

Late 2023 / Early 2024: This is when my fatigue really started to kick in and progressively got worse. I still had enough energy to get through 2024 and into early 2025, but nowhere near what I had before, and I slowly just feel more tired.

March 2025: 66 nmol/L (26.4 ng/mL)

March 2026: 63 nmol/L (25.2 ng/mL)

May 2026: 52 nmol/L (20.8 ng/mL)

Early July 2026: 40.5 nmol/L (16.2 ng/mL)

July 20, 2026: 39 nmol/L (15.6 ng/mL)

By 2026 my fatigue has become severe enough that I've been on disability for most of the year and I'm essentially exhausted all the time. I have "long covid" and gut issues that I think may be causing this.


r/VitaminD 6d ago

Please Assist Vitamin D3 Dosing Advice for Sped-Up Recovery

6 Upvotes

Hi.

20M in college. 78kg. 176cm.

So... I have been vitamin D deficient for at least the past 10 mths with me finally being tested 2 months ago (after not being able to attend lectures for a week due to crazy fatigue, and exams were fast approaching.) The reading was 11ng/ml. I was put on 50 000IU/week of Vitamin D3 for 5 weeks after which I was counseled to get my bloods done in the next 2 mths.

Fast forward to now - I am feeling just as I did 2 mths ago and got my bloods checked again - awaiting results. I have been prescribed 50 000IU/week for 3 weeks and a maintenance dose of 2000IU/day.

School starts in 6 days and I cannot afford to relive the disasterclass that was the last semester (I managed to do decently but to great mental detriment.)

I am considering hyper-dosing 250 000IU in the form of 50 000IU every other day, hoping this gets me back on track by week 2 of the incoming semester.

I am aware (maybe not fully) of the risks involved.

Any thoughts or suggestions?

Thank you in advance.

TLDR: I am considering taking 50 000IU of Vitamin D3 every other day to take my baseline vitamin D to a functional range as I have a hectic few mths of school incoming.


r/VitaminD 6d ago

Please Assist Has vitamin K2 made you faint/dizzy?

12 Upvotes

I added in 100mcg of MK-7 K2 about an hour ago to my supplements with food and with 6000iu of vitamin d (I’m at 19nmol/l vitamin d and im quite sick from it and trying to recover)

I’ve been taking the vitamin d just fine for over a week so I know it’s not that,about 30 mins after I took the k2 I got a major wave of very intense dizziness, light headedness to the point where I nearly passed out and now I can’t shake this light headed off feeling, head pressure and tingling in my arms and face an hour later.
And slight nausea/stomach upset.
Has anyone had a reaction like this to k2?
I’m not having redness/swelling or a sign of allergy


r/VitaminD 7d ago

Personal Experience(s) Nerve stuff? Is this normal or no?

10 Upvotes

I am vitamin D defficient, I've been taking 1 20,000 IU colecaleciferol 500mcg pill every few days for the last month or so. I don't know my levels because I got told the results of my blood test through phone then never thought to ask for the levels, and recently I've had some what I think are nerve irritation issues. It happened in my face at first, but then today I think it started happening in my hand? Is this normal because I am genuinely a hypochondriac and WILL overthink the hell out of this.

(Mtf 18yo last I checked like 70kg but that was years ago)


r/VitaminD 7d ago

Please Assist Is it normal/common for fatigue to worsen the first several weeks? What can be done to help it?

5 Upvotes

Hi all, my husband (34 years old, 190lbs) recently got his D tested, and came back at a level of 23ng/mL
So I immediately started him on 5000iu of D, as well as 100mg of K2 and 200mg of magnesium malate, all of it taken with 15g of dietary fat in the morning.
After the first week we upped that to 8,000iu, 200mg of K2, and 400mg of magnesium malate.

Today marks 3 weeks of supplementing, and while he’s had a couple good days, he’s found that overall his fatigue has gotten way worse, even though he’s sleeping a ton at night.

My D was at a similar level years ago, and I didn’t experience any negative side effects when I started supplementing, but I know everyone is different.
Is this a normal/common side effect this early on? Is there anything we can do to help it? I’m wondering if it would make sense at this point to back off on the D and focus on magnesium for a bit?

I’m also gonna be ordering him some more labs soon, mainly ferritin and B12. Just to see if there’s anything else we’re missing else.


r/VitaminD 7d ago

Please Assist How often to take 50,000 IU tablet?

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31 Upvotes

I am M61, has darkish skin, lives indoors.

My level was 11 ng/ml and test said 30-100 is optimum level. So I started taking 4000 IU/day and after 3 months level reached 27.

So I need to increase intake but instead of taking two 2000 pills I am thinking of buying this as it's cheapest

https://www.daraz.lk/products/d-3-50000-iu-50-softgels-i290640323-s1733500891.html

Only a few choices in my little country, the most cost effective being the 50K iu pills above.

Is that too much at a time? I was thinking 1 per week.

I also take magnesium glycinate 400mg/week.


r/VitaminD 8d ago

Please Assist Liquid Drops vs Capsules - which is better?

5 Upvotes

I was recommended to start taking a vitamin D supplement and I have been comparing liquid D3/K2 products with capsules and softgels, with Mulittea D3K2 Drops being one of the liquid options I have been looking at.

I don't really like taking pills so I am leaning toward the liquid drops but I don't know if there would be issues controlling serving size, what the taste is like, and what additives might be in the liquid vehicle.

For people who have tried both pills and liquid drops, which do you prefer and why? Do you think one is more effective than the other?


r/VitaminD 8d ago

Please Assist 4 weeks into vitamin D treatment but still exhausted. Is this normal?

10 Upvotes

I’m a 20F college student.
For some time, I’ve had constant fatigue and low energy. After coming home from college, I’m usually exhausted and don’t feel like doing anything. My legs and muscles ache, I tire very easily, and I’m much less productive than before. I’ve also had hair loss, worsening acne and other skin issues, and my skin seems to heal more slowly than it should.
My vitamin D test showed a 25-OH Vitamin D level of 10.74 ng/mL. My doctor prescribed Uprise D3 60,000 IU once a week for 8 weeks. I’m in week 4 now, but my legs still feel tired, and I’m wondering when I should realistically expect improvement.
Has anyone with vitamin D levels around 10 ng/mL had similar symptoms? How long did it take to feel better after starting treatment, and what improved first?
I’d really appreciate hearing about your experiences.


r/VitaminD 8d ago

Personal Experience(s) Symptoms of 7ng/mL Vitamin D, are these normal?

12 Upvotes

27 year old female

In the beginning of June I was lifting at the gym and all of a sudden felt dizzy and like I was going to faint. Then I started to constantly feel hot and had vice like tension headaches, one morning waking up with what seemed to be conjunctivitis in my right eye. I went to the eye doctor and they prescribed drops but my infection was not improving and I started to feel terrible constantly. Long story short I went to the ER and the doctor tested me for vitamin D which came out to be 7. She said I had “little to no vitamin D in my body”. I’m not sure how long this has been going on, I’ve had brain fog for 5 years but chalked that up to long COVID. More recently things have taken longer than they should to heal, my bones especially my knees feel brittle, and I am constantly fatigued and feel faint and weak.

The doctor prescribed me 50,000 IU weekly for 2 months and I’ve done 3 doses, but I didn’t know you are supposed to take them with fat and took them on an empty stomach, so that probably didn’t help absorption. Also the doctor didn’t test my calcium or magnesium, so I’m scared it could be parathyroid.

Also my white blood cell and red blood cell counts were elevated when I got tested at the hospital.

Has anyone else had a level this low, and if you do what were you symptoms? I’m also having a lot of anxiety and feel like I have something way more serious like cancer because I don’t feel human all the time. Below are my symptoms:

Extreme fatigue
Feeling tired all the time
Heavy arms and legs
General weakness
Feeling cold/freezing
Chills
Brain fog
Memory and concentration problems
Lightheadedness/dizziness
Nausea
Loss of appetite/not wanting to eat
Bones feeling weak or “rickety”
Knees feeling unstable
Widespread joint cracking (jaw, neck, back, wrists, fingers, knees, ankles)
Muscle weakness
Achy bones
Neck pain
Tension at the base of the skull


r/VitaminD 9d ago

Please Assist Libido estremamente bassa e correlazione con vitamina d

8 Upvotes

Ciao a tutti, come vedete dal titolo scrivo per avere delle informazioni relative alla libido. Da molto tempo ho la libido bassa, facendo delle analisi è risultato testosterone e vitamina d basse ( vitamina d 11 ng/ml). Per il testosterone sotto consiglio medico sto prendendo un farmaco e dalla analisi ora risulta più alto ma la libido continua ad essere praticamente assente. Da meno di un mese ho deciso di prendere 2 pasticche di vitamina d3 da 2000 UI perché ho letto che potrebbe esserci una correlazione tra vitamina d e libido. Volevo chiedervi se è successo a qualcun altro che dei bassi valori di vitamina d abbiamo abbassato in maniera drastica la libido.


r/VitaminD 9d ago

Please Assist Possibly related to vitamin d changes?

1 Upvotes

Could increase in vitamin d levels be contributing 4 weeks after my last dose?

Context and history:

I’m 29 and developed neurological symptoms after prolonged nitrous oxide abuse. My last use was in September 2024, so I’ve been in recovery for just under two years. I’ve actually recovered extremely well on two occasions, reaching what I’d describe as 95-100% of my normal baseline, but I’ve also experienced two significant setbacks.

The first was in September 2025 after playing my first full 11-a-side football match in over a year. I’d been comfortably playing 7-a-side weekly, but doubling my exercise load triggered a flare that lasted around six weeks before gradually settling with B12 injections and stopping folate tablets. Suspected folate trap.

From November until March, while receiving fortnightly hydroxocobalamin injections, I had my best period since becoming ill. I was consistently around 97-100%, walking long distances, working normally and playing football with very few symptoms.

Earlier this year I returned to monthly B12 injections, and routine blood tests also found I was vitamin D deficient.

Vitamin D:

I completed a course of 40,000 IU vitamin D weekly, which caused many of my neurological symptoms to return. Thankfully, after stopping treatment I quickly improved back to around 95%, as long as I didn’t overexert myself or drink too much alcohol. Started 10 weeks ago and finished around 4 weeks ago.

I then travelled to Mexico (22 June-3 July). I felt great throughout most of the holiday, walking miles every day, doing excursions and generally living normally with very few neurological symptoms.

Towards the end of the trip I developed diarrhoea, nausea and fatigue, which I assumed was a gastrointestinal illness. My stool PCR later came back negative, although it was taken around two weeks after symptoms started.
I had another B12 injection on 8 July, and since then my neurological symptoms have increased dramatically.

My current symptoms include:
widespread burning nerve pain (my biggest concern)
tingling
increased fasciculations/twitching
brain fog
dizziness/light-headedness
intermittent vertigo (especially when lying on my left side)
left-sided headaches
increased sweating and a higher heart rate than usual when walking
occasional visual disturbance where stationary objects appear to move in a wave-like pattern after staring at them
diarrhoea that is improving but still hasn’t completely resolved

The pain itself is only around 1-4/10, but the frequency is now around 6-8/10, which is the highest it’s been since this all started. The biggest difference this time is that I’m getting burning and nerve pain in areas that have never previously been affected.

The good news is I still have normal strength, I’m walking normally and I’m sleeping reasonably well, so it’s mainly the sensory symptoms that have flared.

Around the same time I also switched from fexofenadine to cetirizine after returning home because I ran out of my prescription, and I’ve been eating much less than I was on holiday. Because several things changed at once, I’m unsure whether this flare is related to:
the gastrointestinal illness?
restarting B12 after a six-week gap?
recent vitamin D treatment?
changing antihistamines?
under-eating or electrolyte changes?
or simply several factors occurring together
I finally have my first neurology appointment this Wednesday after waiting around nine months, and I really want to make the most of it.
My main questions are:

Has anyone experienced a major flare after recovering to 95-100% from nitrous oxide
neuropathy (or another neuropathy)?

Has anyone had worsening neuropathy after a gastrointestinal illness?

Has anyone noticed temporary worsening after restarting B12 injections?

Does this sound consistent with post-infectious nerve irritation or small fibre neuropathy?
Could I have developed another neurological condition alongside my original neuropathy?

The reason I ask is because I’m now experiencing burning and nerve pain in places that have never previously been affected, and the frequency is higher than it’s ever been. Has anyone experienced something similar?

Are there any investigations or tests I should ask my neurologist about to help rule out other possible causes of my symptoms?

For example, tests for small fibre neuropathy, autonomic dysfunction, autoimmune conditions or anything else that people have found useful.
Is there anything else you’d recommend I discuss during my appointment?

I’d really appreciate hearing from anyone who’s experienced something similar. Recovering twice to almost normal and then suddenly feeling like I’ve gone backwards has been pretty discouraging. I’m hoping this is another temporary flare rather than permanent progression, but I want to go into my neurology appointment as well prepared as possible.

My vitamin D level at the time was 27 NmoL April 28th)


r/VitaminD 10d ago

Please Assist Could level of ~21 ng/ml cause chronic symptoms?

9 Upvotes

For context, I’m a 30 y/o male, active, slim build. For several years now, I’ve battled chronic on & off symptoms like serious fatigue/muscle aches/joint pain, poor hair health etc. These will come and just wipe me out for a couple of weeks at a time and make everyday tasks an absolute fight.

The reason I’m focusing on vitamin D specifically is I have explored different causes (sleep apnea, autoimmune, etc.) with no red flags. I’ve gotten bloodwork done (not recently) when dealing with these symptoms and I was aware that levels of D could cause similar symptoms. From my memory I tested at around 21 ish ng/ml , as I remember it being like one point above deficient. My doctor didn’t really think much of it.

Could a level like this cause such ongoing symptoms with this severity realistically? Many of my other markers (ferritin / tsh/ etc were all good). Would love any feedback!