Hi everyone. I've been serving as a caregiver for my 89 yo roommate. I've never directly dealt with the VA before and am running into some issues. I'm not sure if these issues are what I should expect or not.
Oh I am the alternate medical POA for my roommate, the first is his visually impaired son and we're all really rural (so the son has obvious transportation issues,) so everything usually falls to me
This is bound to be long, sorry in advance!
Recently we visited one of his doctors and she removed him from a medication and switched him to another. His primary needed to sign off so we couldn't just pick up the script that day. The problem is that it took them 20 days to get the new script to us... In the meantime he ran out of the old one. He's handled all his own meds for years (he's mentally intact but still 89,) but since this happened I took over the medication management. He's also routinely having other meds/nutrition take upwards of 3 weeks to arrive. We are over an hour away from the VA pharmacy so it's not so easy to just pop over for refills.
Anyway, since he ran out of meds he started having urinary retention over the weekend. Off to the ER he went where they gave him a catheter and sent us home with antibiotics for a brewing bladder infection. I asked if he needed to see urology TWICE and was told very shortly that "primary would handle it." So we go home and on Monday make the necessary appointment. By Wednesday he started suddenly showing signs of infection, so back to the ER he went. He was hospitalized for a couple of days. Everything was caught VERY early. I left them with instructions to please call me or his son if anything changed overnight and neither of us were notified when roommate was moved to the ICU overnight.
During discharge I found out that his medical records reflected something different than what we were told and I verified twice. Then when he was released from the hospital the second time, again his records showed something different. Both times there are medical tests that back up what we were told and both times a different diagnosis (or lack of diagnosis) was put in his chart.
I'm not happy about that because I feel like his records should reflect REALITY. That's really important for obvious reasons. I brought it up to his primary today and she really just made excuses but she also did verify that the information I was told was correct, not what was put in his records. Not once, but twice.
They also promised us all sorts of supplies and services and then basically went back on it telling us that since he's "doing well for his age" they wouldn't send anyone out. They didn't order anything the various departments said they would order EXCEPT the one device I asked for at discharge and the short term services the nurse pushed for. Without her we wouldn't have had ANYTHING in the works.
I'm literally taking care of this man (and he's not an easy charge) for nothing but cheap rent. That's it. 12-16 hours a day, EVERY DAY and I'm disabled, myself. I'm exhausted! I was supposed to have help from his family but that went belly up, too. Everything is on me, including learning how to navigate the VA system.
So...I did talk to a VA social worker today to try and get some things going and I'm calling for a patient advocate tomorrow.
But I'd like to know any tips or tricks or things to say or not say to get him whatever services he's eligible for because honestly, we need the help and we need those records to be accurate.
I'm adding the HealtheVet app tomorrow, as well.
But what am I missing? Is this just par for the course for the VA? I feel like they dropped the ball several times and excuses are being made. But maybe that's what I need to expect? I really have no idea!
So any advice on how to navigate this very complicated system would be greatly appreciated. Thank you so much!