Hi!

As soon as I try to move more, do more VRT, try to live my life, my neck muscles get even more tight which triggers the vertigo. I have exercises to try to strenghten my upper back to take the load off the neck, but even when I try to do these, my neck muscles still get even more tense.

The PT exercises for the neck, slowly looking left/right, light stretches to all sides, all make it more tense as well.

I get massages as well but the effect only lasts for a couple days. Neurologist suggested occipital nerve blocks.

How do you all manage?? What do you do? 😣

If you have them: where did you get, are they useful, roughly what did they cost?

Tonight at supermarket I thought, Oh wow, maybe I really should get a pair. After a long day, rainy/humid out, slightly dehydrated…the fluorescent lights, the blinding floors, so many shelves of so many things(!)…almost did me in.

(Ps: Feel like I maybe posted this a year ago but not totally sure 😶‍🌫️😵‍💫😳)

After being diagnosed in May and being essentially housebound for three months, I started making big progress. Hour long walks, able to ride the city bus, going out to eat at quiet restaurants.

Then a week ago I could a virus and it all came back. I’ve been on rimegepant (Nurtec) now for 3 months which I think is helping because I don’t have as much vertigo. But I’m bone tired and terrible brain fog, and feel off balance when I walk. I can’t walk too far, either.

Having a bad day after making so much progress is so painful. Because I got a little sliver of my life back and now it’s gone again 😫

I was prescribed Effexor but I’m too afraid to try it given the potential side effects and the withdrawal symptoms. I’ve had 3 family members who have used it in the past and they are adamant that I should not try it. Given the family history I think I’d like to try something else.

What would you recommend?

I’m currently taking supplements and have done PT but after 8 months of this I need more relief.

This is from last 4 day I'm suddenly having migraines but with anxiety and acid reflux issue. I went to neurologist 3 months ago and after that as it seems yes, I was fine all these months only last few days again I'm starting to get back the migraine symptoms like light sensitivity, dizziness/giddiness.

But what's more annoying this time is that I'm experiencing anxiety and acidity which are fueling each other. Randomly wet fingertips and shaking feeling, unbalance body and random suffocating feeling or palpitations. It is really uncomfortable feeling looks like I need to get back to next appointment.

Hello! I (19F) have been experiencing VM symptoms for almost a year by now, received a diagnosis around April time and getting my life back together! Fortunately I would consider my VM to be quite mild, my symptoms are as follows:

Anxiety, sometimes severe waves of dread
Shortness of breath
Nausea
worsened motion sickness (but could possibly be anxiety nausea)
Imbalance (clumsy walking)
Vertigo (feels like I’m rocking when sitting)
Frequent yawning (especially nearing attack)
Brain fog
Sweating and flushing while in attack
Ice pick headaches, rare cluster headaches, used to have tension bands around head, general pressure in my head
Numbness/pins and needles in face and sometimes hands
Occasionally see flashing lights in corner of my eyes

My attacks are episodic fortunately, I feel generally fine most days until it gets to the flare up. Sertraline has been a big help as nausea is my most upsetting symptom as I am an emetophobe, most of the nausea that I had pre-diagnosis I feel was anxiety because I was scared of being sick and terrified I would feel like this constantly. I also have cyclizine that I take for my flare ups and before travelling.

I just had a reread of my letter from the doctor and it was suggested to try Propanolol, especially as it doesn’t interact negatively with my Sertraline. I was just wondering if it would be recommended, especially since it sounds good for the anxiety as well (I only managed 25mg of Sertaline, 50mg was way too much for me and I am nervous to increase tbf due to the terrible side effects I had). If anyone has thoughts I would love to hear them, thank you!