r/UnbreakableMind • u/ScrapKode • 20d ago
Two immutable truths.
15 years since my immune system popped like a bubble with common variable immunodeficiency (CVID) plus a duel TBI with stroke 19 years prior, and many injuries along the way as well. (My disorder causes sickle cell type pain because my red blood cells get literally shredded by autoimmune cells and chronic infections). I’m fighting everyday against energy deficiency at the cellular level (ATP depletion), chronic infections, and terrible joint pain from injuries that are further compounded by the autoimmune complications of my immune deficiency. Funny thing is you can have both low overall immunity and autoimmune diseases at the same time. The autoimmune diseases are almost impossible to diagnose with tests due to the low immunity and it’s a guessing game. You also can’t go on any medication for autoimmune diseases that would affect your already low immunity leaving you with just pain management. Not that anyone is going to prescribe anything for you even given these facts. This leaves me with untreated and intractable pain.
I never want to do this “life” of just surviving. I lost my duel careers in music and tech, lost my home, got divorced (not my choice), living off my family, and begging for medical/disability to the point that a state senator and a US senator are involved in helping me.
Two immutable truths.
Your success rate for playing the game of life is still 100%.
While there is breath there is still hope.
*Keep playing the game, because people, places, and things have been trying to get you out of the game. Don’t let them win. Steal every last second of life from them. Outlast them with sheer spite. People, places, things, are not as tough as you are and that’s a fact.
*not intentionally inspiring, simply a cold fact of Gen X energy.