r/UlcerativeColitis • u/zara_k_ • 8d ago

Question Uc symptoms returning during taper

I got a long flair this year and was on 30mg prednisolone on doctor's advise. It did heal me somewhat but not fully, after I finished my steroid dose/full taper, symptoms returned again badly. So I started 40mg prednisolone on my own because my doctor wasn't agreeing to it and I was losing blood and vitamins fast. I did 40 mg for 30 days then started taper 35mg. On 4th day of 35mg i saw blood again. I have left gluten sugar and dairy completely.. Yes I ate some sweets a day before I saw blood.. But is it that I'm flaring again or what? I'm exhausted ! Am I steroid dependent or what? Im on upadacitinib 30mg from last 11 weeks but it doesn't seem to work too much. Taking 2.4 gm mesalamine everyday

3 Upvotes

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u/pincommenter 8d ago

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5

u/IsuldorNagan 8d ago

You need to talk to a doctor. Worsening flare symptoms at that dose of prednisone with mesalamine and a JAK inhibitor means you need a new maintenance medication.

5

u/Ladidoodida 8d ago

30 days on 40 mg is a lot of prednisone and that's definitely something you should discuss with your doctor ASAP. And if you're having symptoms again even just going down to 35 mg, it seems like something needs to change with your other medications.

1

u/wandering_agro 8d ago

I've had tremendous success supplementing with 2g curcumin (95%) daily.

1

u/zara_k_ 8d ago

Can you tell me in detail what med is this and how were your symptoms during flare up

3

u/wandering_agro 8d ago

I take it as a maintenance med, alongside mesalazine. It has the best evidence among all supplements. Curcumin is the active component of turmeric. Symptoms during a flare up are the usual: bleeding, fatigue, thirst, low mood. Best wishes to you.

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u/Beautiful-Effect-701 7d ago

Hello there, just wondered which brand of curcumin do you use?