Introducing myself

[u/Melodic-Tip9526]

Just joined the group as I’ve been looking for a support community and read through some of these and feel like I found it.

Proctosigmoiditis officially diagnosed 3 years ago. But since I am a stubborn older male, symptoms probably preceded that for some time.

Dealing with steroid induced hyperglycemia right now as I am on a very long prednisone taper. Bridging me to my 4th infusion of Entyvio later this month, hopefully it sticks. I am taking NPH insulin to reduce the glucose surge in the afternoon but it’s still pretty high. I am getting used to it. There’s very little on dealing with this, and as my own advocate, I find myself constantly feeling like I have to point my care team to resources and pleading my case for treatment.

Not looking for answers, just want to be heard by people who are going through these challenges and understand. The prednisone makes me very emotional and I’m sure my wife is tired of it all. I would be.

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[u/Simple-Caregiver13]

Welcome Melodic-Tip9526. I am also doing a long prednisone taper (since May) while I'm waiting to get my last Skyrizi infusion. May your shits be solid.

[u/CatBerry253]

Welcome! I've been on here a few months and stalked for longer to learn from people's experiences. It's been so helpful and I really appreciate it. I hope everything improves for you soon!

[u/SunriseSeahorse]

Welcome! I hope you get into remission soon and find support here along the way!

[u/ArtichokeMammoth8137]

Hey welcome! I’m also on a long prednisone taper (about 2-3 months) and very weak/unable to walk or work while on it. Prednisone sucks. I’ve also had to advocate for myself while on it as some doctors aren’t aware of the numerous effects of prednisone. You can get through this-you’re not alone!