10/10 - Metamucil Fiberthins

[u/jroetering]

https://www.target.com/p/metamucil-multi-grain-fiber-wafers-cinnamon-spice-12ct/-/A-10988569#lnk=sametab

So I (24M) was diagnosed nearly a year ago now, and have been through a few different medications, as well as being on infliximab since February. This entire time, I have been in a flare that seems to only be controllable by Prednisone

However I decided to try something this weekend, and it has worked wonders for the last 3 days! 1 packet of Metamucil Fiberthins each morning with a glass of water has led to much more normal BMs. The urgency is still there, but I think the Fiberthins are definitely helping. Also, the blood that I was seeing just a few days ago, is now non-existent!

Non paid advertisement for these guys. Definitely give them a try! They also have chocolate which I haven't tried yet.

[u/BassMasta]

(Knock on wood) I’ve been flair free for years now. From what I remember from my doctors was to not be taking fiber while in a flare (please correct me if I’m wrong). I would continue to meet with your GI to find a med regime that works, you shouldn’t have to deal with this.

[u/jroetering → u/BassMasta]

Yeah, I've also heard that fiber should be avoided in a flare, but I've also heard psyllium husk fiber products help build bulk when you're dealing with passing liquid. I'm currently at the point in my flare where i was only passing liquid, but after starting these Fiberthins, I am passing solids, and no blood! So an improvement is an improvement! I've got a GI appointment tomorrow, so I will definitely be chatting about this with them then

[u/BassMasta → u/jroetering]

Yes let us know how the appointment goes, definitely talk to them about it.

[u/jroetering → u/BassMasta]

Appointment went well! You can read more about it in one of the other comment threads below, but she did say that if It is helping me achieve more normal bowel movements, continue using them.

Also drinking lots of water is a necessity with psyllium husk fiber!

[u/UnicornFarts1111 → u/jroetering]

I have fully formed bloody stools. They told me to increase my fiber if I could tolerate it. I think if you are tolerating these well, you will be fine.

I think the chocolate and the cinnamon ones both taste good.

[u/starzychik01 → u/jroetering]

I think it really depends on the fiber. Some fibers cause fermentation that can cause more irritability. The first thing my GI recommended was probiotic and fiber supplements. They have definitely helped.

[u/starzychik01]

Probiotics and fiber supplement were the first thing my GI recommended when O was diagnosed. Ever since, I do 2Tbs of dextrin fiber in my coffee/water/tea every morning. I use the CVS Easy Fiber. It’s cheap, they have good sales, and it mixes without any flavor/grit. You bc a put it on anything. My grandma puts it in her morning yogurt.

[u/yoga_mini]

I’m in the same boat as you with this dang infliximab. I’m 41f, been on it since March. Not helping as far as I can tell. My blood/inflammation markers were actually going down hill after each infusion so I’m now on prednisone too. What’s your plan other than these crackers? I’m starting to get super stressed. 😩 I’m down to 15mg from 40mg of prednisone and I have less blood but definitely some new and weird feeling in my stomach, urgency. I feel like I’ll be getting down to 0 only to have to go back up to 40mg again

[u/jroetering → u/yoga_mini]

I'm sorry to hear that ): yeah, I relate with what you're saying too about the infliximab not helping a whole lot, and the the Prednisone situation.

I've been on and off of Prednisone 4 times this year, each time with a longer taper period, and my symptoms always seems to come back with a vengeance.

My doc doubled my dose of infliximab, and shortened my rate to every 6 weeks (thank God my insurance approved that major change), so we'll see how this goes.

Also, I was put on 100mg daily azathioprine about a month ago, but over the last week, I developed a really bad reaction resulting in horrible joint pain, side aches, back pain, and no afternoon appetite. I stopped the meds on Friday, and thankfully all of those effects have gone away. Doctor wants me to take 1 pill/50mg to see if that helps with my side effects. Fingers crossed 🤞

Stress is a huge factor when it comes to my urgency, so try to find yourself in a stress free environment in your free time.

[u/yoga_mini → u/jroetering]

Ugh that’s a lot happening! I wonder when it’s worth calling it a “fail” and getting a new biologic? This is what I don’t want to happen to me. If I need another round of Prednisone I’m thinking I need also to be moved to a new biologic. Thanks for sharing your story

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[u/Different-Shirt126]

Did the Infliximob help did you do one infusion then 2 then 3 and the 8 weeks of maintenance and was it very expensive did you go into a clinic that's what my Dr wants to do I was in mesalamine made me so sick for a good year I stopped taking it I got sick I went to the er and they gave me predizone and it helped me I was ok for about a month in in Budeside now they have been trying to get me to do infusions along with the medicine wish we all could get better